研究数据与护理的相互支持

IF 1.9 4区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE
Francisca Nordfalk
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引用次数: 0

摘要

公共卫生研究取决于能否获得人口数据。本文是对公共卫生研究数据收集的实践和工作的研究。在丹麦,通过一项国家筛查规划,几乎从每一个新生儿身上抽取血液样本。这些样本可以与其他健康数据结合起来用于研究目的,而无需获得提供样本者的明确同意。我用民族志的方法,研究丹麦NDBS样本的实践、工作和工作者,并探讨新生儿如何成为重要的国家研究资源。从这些研究中,我认为以这种方式制造国家研究资源是研究数据和护理的“相互使能”。卫生专业人员和研究人员的工作相互促进了专业护理和为研究收集样本和数据的机会。正是通过这种研究数据和护理的相互支持,新生婴儿才成为一个全国性的研究人群。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Mutual Enablement of Research Data and Care
Public health research depends on access to population data. This article is a study of the practices and the work enabling data collection for public health research. In Denmark, a blood sample is taken from practically every single newborn baby through a national screening programme. These samples can be combined with other health data and used for research purposes without explicit consent from those giving the samples. With an ethnographic approach, I study the practices, the work and the workers of the Danish NDBS samples, and explore how newborn babies come to serve as an important national research resource. From these studies, I argue that the making of national research resources in this way is ‘mutual enablement’ of research data and care. The work of both health professionals and researchers mutually enables professional care and opportunities for collection of samples and data for research. It is through this mutual enablement of research data and care that newborn babies become a national research population.
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来源期刊
Science and Technology Studies
Science and Technology Studies HISTORY & PHILOSOPHY OF SCIENCE-
CiteScore
3.20
自引率
8.30%
发文量
23
审稿时长
53 weeks
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