1 型糖尿病:解决从以儿童为导向的医疗保健向以成人为导向的医疗保健过渡的问题。

Research and reports in endocrine disorders Pub Date : 2016-01-01 Epub Date: 2016-04-13 DOI:10.2147/RRED.S56609
Maureen Monaghan, Katherine Baumann
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引用次数: 0

摘要

患有 1 型糖尿病的青少年和年轻成人面临着不良健康后果的风险,包括血糖控制不佳、急性和慢性并发症以及急诊入院。在这一发育阶段,青少年和年轻成人患者的生活环境、教育和/或医疗服务也会发生重大变化,包括从儿科转到成人医疗服务。近年来,专业和倡导组织提出了专家指南,以改善准备和过渡到以成人为导向的医疗保健的过程。然而,挑战依然存在,以证据为基础的为青少年准备成人医疗保健的实践仍在不断涌现。定性研究表明,青少年患者依赖于医疗服务提供者在过渡过程中为他们提供指导,并欣赏循序渐进的方式来准备接受成人导向的医疗服务,让父母在青少年成年后继续扮演支持者的角色。患者还可以从成人医疗服务提供者的具体转介和联系信息中获益。有前景的过渡护理模式包括提供过渡导航员、参加年轻成人桥梁诊所或与儿科和成人护理提供者联合就诊。然而,这些研究大多处于早期阶段,需要进行更严格的试验来评估过渡到成人医疗保健期间的健康结果。本综述旨在概述过渡过程、患者和医疗服务提供者对过渡护理的看法,以及参与以成人为导向的医疗护理的成功护理模式的新证据。此外,还为医疗服务提供者提供了建议和资源。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Type 1 diabetes: addressing the transition from pediatric to adult-oriented health care.

Adolescents and young adults with type 1 diabetes are at risk for poor health outcomes, including poor glycemic control, acute and chronic complications, and emergency department admissions. During this developmental period, adolescent and young adult patients also experience significant changes in living situation, education, and/or health care delivery, including transferring from pediatric to adult health care. In recent years, professional and advocacy organizations have proposed expert guidelines to improve the process of preparation for and transition to adult-oriented health care. However, challenges remain and evidence-based practices for preparing youth for adult health care are still emerging. Qualitative research suggests that adolescent and young adult patients rely on health care providers to guide them through the transition process and appreciate a gradual approach to preparing for adult-oriented health care, keeping parents in supportive roles into young adulthood. Patients also benefit from specific referrals and contact information for adult care providers. Promising models of transition care include provision of transition navigators, attendance at a young adult bridge clinic, or joint visits with pediatric and adult care providers. However, much of this research is in its early stages, and more rigorous trials need to be conducted to evaluate health outcomes during transition into adult health care. The purpose of this review is to provide an overview of the transition process, patient and health care provider perceptions of transition care, and emerging evidence of successful models of care for engagement in adult-oriented health care. Recommendations and resources for health care providers are also presented.

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