儿科癌症患者在生命威胁时刻的心理体验:个案研究

Q3 Nursing
Emília Comas Carbonell, M. P. Campdepadrós, Ester Busquets i Alibés, Dolors Mateo Ortega
{"title":"儿科癌症患者在生命威胁时刻的心理体验:个案研究","authors":"Emília Comas Carbonell, M. P. Campdepadrós, Ester Busquets i Alibés, Dolors Mateo Ortega","doi":"10.20986/MEDPAL.2021.1213/2020","DOIUrl":null,"url":null,"abstract":"Introduction: Cancer is considered a life-threatening disease as it implies the probability that the child will die prematurely. There is little information from the pediatric patient's perspective about their psychological experience in life-threatening situations. This study aims to expand knowledge in this area by presenting the experience of a child cancer survivor in life-threatening situations. Patient and methods: 9-year-old patient who was diagnosed with osteosarcoma in the femur. A case study design is followed, in which the information was collected through a semi-structured interview, and an interpretative phenomenological analysis was carried out with the resulting data. Results: The main feelings experienced in life-threatening situations were fear, sadness and impotence. One of the trigger factors was to think about the possibility of being separated from his parents. This experience had an impact on his life and shaped his identity. To deal with this difficult situation, he used approach coping strategies, such as emotional connection, and avoidance, such as distraction, humor, and forgetting. Discussion: The emotional reactions to the experience and the impact that this had on the minor's life can be interpreted within the Pediatric Medical Traumatic Stress model. Knowing the experience from the point of view of the pediatric patient, together with his way of coping with it, can help to reinforce or adapt the interventions for clinical practice.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"La experiencia psicológica de un paciente pediátrico con cáncer en momentos de amenaza vital: Estudio de caso\",\"authors\":\"Emília Comas Carbonell, M. P. Campdepadrós, Ester Busquets i Alibés, Dolors Mateo Ortega\",\"doi\":\"10.20986/MEDPAL.2021.1213/2020\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction: Cancer is considered a life-threatening disease as it implies the probability that the child will die prematurely. There is little information from the pediatric patient's perspective about their psychological experience in life-threatening situations. This study aims to expand knowledge in this area by presenting the experience of a child cancer survivor in life-threatening situations. Patient and methods: 9-year-old patient who was diagnosed with osteosarcoma in the femur. A case study design is followed, in which the information was collected through a semi-structured interview, and an interpretative phenomenological analysis was carried out with the resulting data. Results: The main feelings experienced in life-threatening situations were fear, sadness and impotence. One of the trigger factors was to think about the possibility of being separated from his parents. This experience had an impact on his life and shaped his identity. To deal with this difficult situation, he used approach coping strategies, such as emotional connection, and avoidance, such as distraction, humor, and forgetting. Discussion: The emotional reactions to the experience and the impact that this had on the minor's life can be interpreted within the Pediatric Medical Traumatic Stress model. Knowing the experience from the point of view of the pediatric patient, together with his way of coping with it, can help to reinforce or adapt the interventions for clinical practice.\",\"PeriodicalId\":49831,\"journal\":{\"name\":\"Medicina Paliativa\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medicina Paliativa\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.20986/MEDPAL.2021.1213/2020\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medicina Paliativa","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.20986/MEDPAL.2021.1213/2020","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
引用次数: 0

摘要

癌症被认为是一种危及生命的疾病,因为它意味着儿童过早死亡的可能性。从儿科患者的角度来看,关于他们在危及生命的情况下的心理体验的信息很少。本研究旨在通过呈现儿童癌症幸存者在危及生命的情况下的经验来扩大这一领域的知识。患者和方法:9岁,股骨骨肉瘤患者。接下来是案例研究设计,其中通过半结构化访谈收集信息,并对所得数据进行解释性现象学分析。结果:在危及生命的情况下,主要感受是恐惧、悲伤和阳痿。其中一个触发因素是考虑到与父母分离的可能性。这段经历对他的生活产生了影响,塑造了他的身份。为了处理这种困难的情况,他使用了接近的应对策略,比如情感联系,以及逃避,比如分心、幽默和遗忘。讨论:对经历的情绪反应和对未成年人生活的影响可以在儿科医学创伤压力模型中解释。从儿科患者的角度了解经验,以及他的应对方式,可以帮助加强或适应临床实践的干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
La experiencia psicológica de un paciente pediátrico con cáncer en momentos de amenaza vital: Estudio de caso
Introduction: Cancer is considered a life-threatening disease as it implies the probability that the child will die prematurely. There is little information from the pediatric patient's perspective about their psychological experience in life-threatening situations. This study aims to expand knowledge in this area by presenting the experience of a child cancer survivor in life-threatening situations. Patient and methods: 9-year-old patient who was diagnosed with osteosarcoma in the femur. A case study design is followed, in which the information was collected through a semi-structured interview, and an interpretative phenomenological analysis was carried out with the resulting data. Results: The main feelings experienced in life-threatening situations were fear, sadness and impotence. One of the trigger factors was to think about the possibility of being separated from his parents. This experience had an impact on his life and shaped his identity. To deal with this difficult situation, he used approach coping strategies, such as emotional connection, and avoidance, such as distraction, humor, and forgetting. Discussion: The emotional reactions to the experience and the impact that this had on the minor's life can be interpreted within the Pediatric Medical Traumatic Stress model. Knowing the experience from the point of view of the pediatric patient, together with his way of coping with it, can help to reinforce or adapt the interventions for clinical practice.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Medicina Paliativa
Medicina Paliativa HEALTH CARE SCIENCES & SERVICES-
CiteScore
0.50
自引率
0.00%
发文量
18
审稿时长
>12 weeks
期刊介绍: Medicina Paliativa, publicada desde 1994, es la publicación oficial de la Sociedad Española de Cuidados Paliativos (SECPAL). Medicina Paliativa es una revista trimestral de revisión por pares y sirve a un público interdisciplinario de profesionales, proporcionando un foro para la publicación de manuscritos en español de todas las disciplinas asociadas a los cuidados paliativos y en especial los de carácter multidisciplinar.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信