沙特阿拉伯自闭症儿童照顾者的生活质量：横断面研究

IF 1.2 4区医学 Q4 CLINICAL NEUROLOGY

Neurosciences Pub Date : 2022-07-01 DOI:10.17712/nsj.2022.3.20210141

B. Al-Jabri, Refal M. Abualhamael, Maryam T. Al Hazza, Salwa A. Bahabri, Yara M. Alamri, Bayan M. Alghamdi

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引用次数: 4

摘要

目的：评估照顾自闭症谱系障碍（ASD）儿童对生活质量（QOL）的影响，并根据省级居住地检查其影响。方法：这是一项观察性横断面研究，于2019年5月至7月在吉达阿卜杜勒阿齐兹国王大学医院进行。812名参与者被包括在内，并被平均分为患有和不患有自闭症儿童的照顾者。数据是通过一份在线问卷收集的，该问卷通过沙特阿拉伯所有13个省的自闭症协会和家长支持小组分发。结果：患有ASD的儿童的照顾者在大多数生活质量领域的得分都低于没有ASD的孩子的照顾者（p<0.05，只有一个领域除外）。还考虑了其他因素的影响，包括照顾者的年龄、照顾者与孩子的关系、居住的具体省份以及医疗服务的提供。结论：ASD患儿的护理与生活质量评分呈显著负相关。

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Quality of life of caregivers of autistic children in Saudi Arabia: Cross-sectional study

Objectives: To assess the impact on quality of life (QOL) caused by caring for children with autism spectrum disorder (ASD) and examine the impact according to provincial residence. Methods: This was an observational, cross-sectional study conducted from May to July 2019 at King Abdulaziz University Hospital in Jeddah. Eight hundred and twelve participants were included and divided equally into caregivers of children with and without ASDs. Data were collected through an online questionnaire distributed via autism associations and parental support groups across all 13 Saudi Arabian provinces. Results: Caregivers of children with ASDs showed lower scores in most quality-of-life domains compared with those of caregivers of children without ASDs (p<0.05, except for one domain). The impacts of additional factors were considered, including the caregivers’ age, the relation of the caregiver to the child, the specific province of residence, and the provision of medical services. Conclusion: A significant negative correlation was found between caregiving for children with ASDs and quality-of-life scores.

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来源期刊

Neurosciences 医学-临床神经学

CiteScore

1.40

自引率

0.00%

发文量

审稿时长

4.5 months

期刊介绍： Neurosciences is an open access, peer-reviewed, quarterly publication. Authors are invited to submit for publication articles reporting original work related to the nervous system, e.g., neurology, neurophysiology, neuroradiology, neurosurgery, neurorehabilitation, neurooncology, neuropsychiatry, and neurogenetics, etc. Basic research withclear clinical implications will also be considered. Review articles of current interest and high standard are welcomed for consideration. Prospective workshould not be backdated. There are also sections for Case Reports, Brief Communication, Correspondence, and medical news items. To promote continuous education, training, and learning, we include Clinical Images and MCQ’s. Highlights of international and regional meetings of interest, and specialized supplements will also be considered. All submissions must conform to the Uniform Requirements.