Orthodontic patient experiences shared on social media: A scoping review

The use of social media has increased significantly, which enables the sharing of patient experiences of healthcare interventions. Evaluation of the available data regarding patient experiences of their own orthodontic treatment is lacking. The present registered scoping review aimed to collate and evaluate the current evidence to enable a greater understanding of the experiences of patients, undergoing orthodontic treatment, conveyed via social media platforms regarding their treatment. Studies with patients reporting their orthodontic experiences through social media platforms regarding orthodontic treatment were considered for evaluation. Four electronic databases (PubMed, Web of Science, Embase and Scopus) were searched up until January 29^th, 2023.

A total of 379 records were screened, of which 47 potentially pertinent articles were obtained in full. Twelve studies satisfied the inclusion and exclusion criteria following screening and were assessed in the present scoping review. Most studies evaluated patient experiences conveyed via Twitter. The findings indicated that patient experiences regarding orthodontic treatment were generally positive and those regarding orthodontic retention were generally negative. Positive experiences included satisfaction associated with treatment outcome, removal of fixed appliances and the aesthetic appearance of clear aligners. Negative experiences related to pain/discomfort, impact on speech and eating, dislike of retainers and the need to comply with retainer wear protocols. Instagram appears to be the social media platform through which patients are more likely to express positive sentiments. Research is required to develop validated methodological processes to enable future systematic review and meta-analysis of relevant studies, and to develop strategies for the orthodontic profession to minimise the negative experiences borne by their patients. In addition, guidance on the appropriate ethical management of data in future similar studies is required.