参与性神经多样性研究的共同设计:与社区咨询委员会合作设计研究

Anne-Laure Le Cunff, Poppy Ellis Logan, Rhian Ford, Brandon-Lee Martis, Iris Mousset, Jane Sekibo, E. Dommett, V. Giampietro
{"title":"参与性神经多样性研究的共同设计:与社区咨询委员会合作设计研究","authors":"Anne-Laure Le Cunff, Poppy Ellis Logan, Rhian Ford, Brandon-Lee Martis, Iris Mousset, Jane Sekibo, E. Dommett, V. Giampietro","doi":"10.35844/001c.66184","DOIUrl":null,"url":null,"abstract":"Inclusive research practice characterized by the involvement of neurodivergent people in meaningful roles has been described as a “requirement of excellence” in neurodiversity research. This report describes a co-design process in partnership with a Community Advisory Board undertaken to develop a research study involving neurotypical and neurodivergent students as participants. From the formation of the partnership with seven Community Advisory Board members to the outcomes of the co-design process, this report details the methods associated with each step, as well as the benefits and challenges collated in collaboration with members of the Community Advisory Board. Opportunities for improvement in co-design for participatory neurodiversity research are suggested.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Co-Design for Participatory Neurodiversity Research: Collaborating With a Community Advisory Board to Design a Research Study\",\"authors\":\"Anne-Laure Le Cunff, Poppy Ellis Logan, Rhian Ford, Brandon-Lee Martis, Iris Mousset, Jane Sekibo, E. Dommett, V. Giampietro\",\"doi\":\"10.35844/001c.66184\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Inclusive research practice characterized by the involvement of neurodivergent people in meaningful roles has been described as a “requirement of excellence” in neurodiversity research. This report describes a co-design process in partnership with a Community Advisory Board undertaken to develop a research study involving neurotypical and neurodivergent students as participants. From the formation of the partnership with seven Community Advisory Board members to the outcomes of the co-design process, this report details the methods associated with each step, as well as the benefits and challenges collated in collaboration with members of the Community Advisory Board. Opportunities for improvement in co-design for participatory neurodiversity research are suggested.\",\"PeriodicalId\":73887,\"journal\":{\"name\":\"Journal of participatory research methods\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-02-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of participatory research methods\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.35844/001c.66184\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of participatory research methods","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.35844/001c.66184","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1

摘要

以神经分化人群参与有意义的角色为特征的包容性研究实践被描述为神经多样性研究的“卓越要求”。本报告描述了与社区咨询委员会合作的共同设计过程,该过程旨在开发一项研究,参与者包括神经正常和神经分化的学生。从与七名社区咨询委员会成员建立伙伴关系到共同设计过程的结果,本报告详细介绍了与每一步相关的方法,以及与社区咨询委员会的成员合作整理的好处和挑战。为参与性神经多样性研究的共同设计提供了改进的机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Co-Design for Participatory Neurodiversity Research: Collaborating With a Community Advisory Board to Design a Research Study
Inclusive research practice characterized by the involvement of neurodivergent people in meaningful roles has been described as a “requirement of excellence” in neurodiversity research. This report describes a co-design process in partnership with a Community Advisory Board undertaken to develop a research study involving neurotypical and neurodivergent students as participants. From the formation of the partnership with seven Community Advisory Board members to the outcomes of the co-design process, this report details the methods associated with each step, as well as the benefits and challenges collated in collaboration with members of the Community Advisory Board. Opportunities for improvement in co-design for participatory neurodiversity research are suggested.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信