为人父母和生殖语言的代表团:关于ART儿童出生的专家和患者

Q2 Social Sciences
O. Isupova
{"title":"为人父母和生殖语言的代表团:关于ART儿童出生的专家和患者","authors":"O. Isupova","doi":"10.3897/popecon.4.e57400","DOIUrl":null,"url":null,"abstract":"While understanding their positions on various ethical issues in the field of reproductive technologies, IVF patients form their own special language, not scientific, but rather vernacular, based on real experience. A group of women actively seeking procreation with modern biotechnologies remains somewhat conservative, focused on a traditional family. New concepts and terminology are particularly well-formed in their disputes over the use of reproductive donation. In general, what they articulate and advocate is consistent with concepts of bioethics that are also controversial – for some, the priority of genetic connectivity is unusually strong, while others deny its significance. The study bases on examining perceptions of reproductive donation by bioethics specialists presented in the literature and their comparison with the views of ART patients communicating on the Internet. The author uses qualitative discourse analysis and studies thematic discussions on the Probirka.ru website, which are devoted to the preferences of their participants in relation to reproductive donation, its acceptance or rejection. The study shows that patients’ positions are somewhat more extreme than the views of bioethics. For example, some participants practically deny the existence of genes, while others talk about the advantage of finding a child without using one’s own body. The author reveals different groups of patients, and more traditionally oriented women prefer to delegate the genetic part of parenthood to third parties and cannot refuse to bear pregnancy as they see it as a central part of female identity, while more modernized prefer to keep genetic connection if it is possible to refuse childbearing.","PeriodicalId":33779,"journal":{"name":"Naselenie i ekonomika","volume":" ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2020-12-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Delegation of parenthood and language of reproduction: experts and patients on the birth of ART-children\",\"authors\":\"O. Isupova\",\"doi\":\"10.3897/popecon.4.e57400\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"While understanding their positions on various ethical issues in the field of reproductive technologies, IVF patients form their own special language, not scientific, but rather vernacular, based on real experience. A group of women actively seeking procreation with modern biotechnologies remains somewhat conservative, focused on a traditional family. New concepts and terminology are particularly well-formed in their disputes over the use of reproductive donation. In general, what they articulate and advocate is consistent with concepts of bioethics that are also controversial – for some, the priority of genetic connectivity is unusually strong, while others deny its significance. The study bases on examining perceptions of reproductive donation by bioethics specialists presented in the literature and their comparison with the views of ART patients communicating on the Internet. The author uses qualitative discourse analysis and studies thematic discussions on the Probirka.ru website, which are devoted to the preferences of their participants in relation to reproductive donation, its acceptance or rejection. The study shows that patients’ positions are somewhat more extreme than the views of bioethics. For example, some participants practically deny the existence of genes, while others talk about the advantage of finding a child without using one’s own body. The author reveals different groups of patients, and more traditionally oriented women prefer to delegate the genetic part of parenthood to third parties and cannot refuse to bear pregnancy as they see it as a central part of female identity, while more modernized prefer to keep genetic connection if it is possible to refuse childbearing.\",\"PeriodicalId\":33779,\"journal\":{\"name\":\"Naselenie i ekonomika\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-12-31\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Naselenie i ekonomika\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3897/popecon.4.e57400\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"Social Sciences\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Naselenie i ekonomika","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3897/popecon.4.e57400","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Social Sciences","Score":null,"Total":0}
引用次数: 0

摘要

试管婴儿患者在理解他们对生殖技术领域各种伦理问题的立场的同时,根据真实经验形成了自己的特殊语言,不是科学的,而是白话。一群积极利用现代生物技术寻求生育的女性仍然有些保守,专注于传统家庭。在关于生殖捐赠使用的争议中,新的概念和术语形成得特别好。总的来说,他们所阐述和倡导的与同样有争议的生物伦理概念是一致的——对一些人来说,基因连接的优先性异常强烈,而另一些人则否认其重要性。这项研究的基础是研究文献中生物伦理专家对生殖捐赠的看法,并将其与互联网上交流的ART患者的看法进行比较。作者使用定性话语分析,并研究了Probirka.ru网站上的主题讨论,这些讨论专门讨论参与者对生殖捐赠的偏好、接受或拒绝。研究表明,患者的立场比生物伦理学的观点更极端。例如,一些参与者实际上否认基因的存在,而另一些人则谈论在不使用自己身体的情况下找到孩子的好处。作者揭示了不同的患者群体,更传统的女性更喜欢将为人父母的基因部分委托给第三方,不能拒绝怀孕,因为她们认为怀孕是女性身份的核心部分,而更现代化的女性更愿意在可能拒绝生育的情况下保持基因联系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Delegation of parenthood and language of reproduction: experts and patients on the birth of ART-children
While understanding their positions on various ethical issues in the field of reproductive technologies, IVF patients form their own special language, not scientific, but rather vernacular, based on real experience. A group of women actively seeking procreation with modern biotechnologies remains somewhat conservative, focused on a traditional family. New concepts and terminology are particularly well-formed in their disputes over the use of reproductive donation. In general, what they articulate and advocate is consistent with concepts of bioethics that are also controversial – for some, the priority of genetic connectivity is unusually strong, while others deny its significance. The study bases on examining perceptions of reproductive donation by bioethics specialists presented in the literature and their comparison with the views of ART patients communicating on the Internet. The author uses qualitative discourse analysis and studies thematic discussions on the Probirka.ru website, which are devoted to the preferences of their participants in relation to reproductive donation, its acceptance or rejection. The study shows that patients’ positions are somewhat more extreme than the views of bioethics. For example, some participants practically deny the existence of genes, while others talk about the advantage of finding a child without using one’s own body. The author reveals different groups of patients, and more traditionally oriented women prefer to delegate the genetic part of parenthood to third parties and cannot refuse to bear pregnancy as they see it as a central part of female identity, while more modernized prefer to keep genetic connection if it is possible to refuse childbearing.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Naselenie i ekonomika
Naselenie i ekonomika Social Sciences-Gender Studies
CiteScore
2.10
自引率
0.00%
发文量
19
审稿时长
12 weeks
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信