{"title":"残疾儿童家庭的压力、韧性和满意度","authors":"Esther Vela Llauradó, José Manuel Suárez Riveiro","doi":"10.6000/2292-2598.2022.10.01.1","DOIUrl":null,"url":null,"abstract":"Background: A child’s disability can have significant consequences for the family, especially at an emotional level and in day-to-day life. Families must adapt to ever-changing circumstances, frequently leading to stress within the family. Each family member must attempt to cope with these circumstances, drawing on cognitive and behavioral resources to deal with new situations. \nObjectives: This work aims to study stress, resilience, and satisfaction within the families of children with and without disabilities. It also analyzed these aspects depending on the type of disability (intellectual, physical, autism spectrum disorder, and multiple disabilities). \nMethods: The sample consisted of 299 families, of whom 178 had a child with a disability and 121 without any disability. The study used the Parenting Stress Index – Short Form (PSI-FS) and the Saavedra-Villalta Resilience Scale (SV-RES). Satisfaction was measured using two items evaluating family satisfaction in general and the perceived satisfaction of the child in particular. \nResults: The results show that families having a child with a disability reported higher levels of resilience but lower levels of stress and family satisfaction. Moreover, differences were observed depending on the type of disability, with those affected by intellectual disability showing higher levels of stress and lower levels of resilience. \nConclusion: The study results show the importance of resilience in dealing with adverse situations that may produce stress. This is an important aspect that must be considered in work and interventions with families of children with disabilities.","PeriodicalId":37806,"journal":{"name":"Journal of Intellectual Disability - Diagnosis and Treatment","volume":" ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"4","resultStr":"{\"title\":\"Stress, Resilience, and Satisfaction in Families of Children with Disabilities\",\"authors\":\"Esther Vela Llauradó, José Manuel Suárez Riveiro\",\"doi\":\"10.6000/2292-2598.2022.10.01.1\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Background: A child’s disability can have significant consequences for the family, especially at an emotional level and in day-to-day life. Families must adapt to ever-changing circumstances, frequently leading to stress within the family. Each family member must attempt to cope with these circumstances, drawing on cognitive and behavioral resources to deal with new situations. \\nObjectives: This work aims to study stress, resilience, and satisfaction within the families of children with and without disabilities. It also analyzed these aspects depending on the type of disability (intellectual, physical, autism spectrum disorder, and multiple disabilities). \\nMethods: The sample consisted of 299 families, of whom 178 had a child with a disability and 121 without any disability. The study used the Parenting Stress Index – Short Form (PSI-FS) and the Saavedra-Villalta Resilience Scale (SV-RES). Satisfaction was measured using two items evaluating family satisfaction in general and the perceived satisfaction of the child in particular. \\nResults: The results show that families having a child with a disability reported higher levels of resilience but lower levels of stress and family satisfaction. Moreover, differences were observed depending on the type of disability, with those affected by intellectual disability showing higher levels of stress and lower levels of resilience. \\nConclusion: The study results show the importance of resilience in dealing with adverse situations that may produce stress. This is an important aspect that must be considered in work and interventions with families of children with disabilities.\",\"PeriodicalId\":37806,\"journal\":{\"name\":\"Journal of Intellectual Disability - Diagnosis and Treatment\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-02-09\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"4\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Intellectual Disability - Diagnosis and Treatment\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.6000/2292-2598.2022.10.01.1\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Social Sciences\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Intellectual Disability - Diagnosis and Treatment","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.6000/2292-2598.2022.10.01.1","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Social Sciences","Score":null,"Total":0}
Stress, Resilience, and Satisfaction in Families of Children with Disabilities
Background: A child’s disability can have significant consequences for the family, especially at an emotional level and in day-to-day life. Families must adapt to ever-changing circumstances, frequently leading to stress within the family. Each family member must attempt to cope with these circumstances, drawing on cognitive and behavioral resources to deal with new situations.
Objectives: This work aims to study stress, resilience, and satisfaction within the families of children with and without disabilities. It also analyzed these aspects depending on the type of disability (intellectual, physical, autism spectrum disorder, and multiple disabilities).
Methods: The sample consisted of 299 families, of whom 178 had a child with a disability and 121 without any disability. The study used the Parenting Stress Index – Short Form (PSI-FS) and the Saavedra-Villalta Resilience Scale (SV-RES). Satisfaction was measured using two items evaluating family satisfaction in general and the perceived satisfaction of the child in particular.
Results: The results show that families having a child with a disability reported higher levels of resilience but lower levels of stress and family satisfaction. Moreover, differences were observed depending on the type of disability, with those affected by intellectual disability showing higher levels of stress and lower levels of resilience.
Conclusion: The study results show the importance of resilience in dealing with adverse situations that may produce stress. This is an important aspect that must be considered in work and interventions with families of children with disabilities.
期刊介绍:
The journal aims to describe the research work on Intellectual Disability Diagnosis and Treatment in children and adults. It covers not just the technical aspects of the procedures in prenatal, newborn and postnatal screening, but also the impact which the process of testing and treatment has on individuals, parents, families and public-health in general. The journal seeks to publish, but is a not restricted to, Genetic Intellectual Disability Syndromes, using a range of approaches from medicine, psychiatry, psychology, pharmacy, biology, epidemiology, bioinformatics, biopharmaceutical to association and population studies as well as sociological, ethical, philosophical, legal and quality control issues with the ultimate goal of advancing the knowledge on the diagnosis, prevention, and treatment of the Intellectual Disabilities. The journal publishes original research articles, review articles, case reports and short communications(Letter article).