C. C. T. Lino, Danielle da Silva Pinheiro Wellichan, Michelle Maia Mendonça
{"title":"聋哑专业护理中心一名Patau综合征患儿的发育","authors":"C. C. T. Lino, Danielle da Silva Pinheiro Wellichan, Michelle Maia Mendonça","doi":"10.26673/TES.V16I1.13743","DOIUrl":null,"url":null,"abstract":"This is a follow-up field study on the evolution of cognitive and psychomotor development of a child with total congenital deafblindness and Patau Syndrome, attending at a Specialized Care Center - Deafblindness in the interior of the State of Parana. The child was identified as AC to guarantee the identity. The objective is to describe the child's performance in 2019 based on the methodology of Jan Van Dijk used for babies with deafblindness in pre-linguistic phase. Although the literature presents us with limited possibilities for these children, it was found that the professional must believe in early and continued stimulation to benefit the child's quality of life and allow hope for families. The results of Jan Van Dijk's methodology suggest that they are effective in individual care with the child, who favor alternative communication resources.","PeriodicalId":32032,"journal":{"name":"Temas em Educacao e Saude","volume":"1 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2020-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Desenvolvimento de uma criança com Síndrome de Patau em um Centro de Atendimento Especializado em Surdocegueira\",\"authors\":\"C. C. T. Lino, Danielle da Silva Pinheiro Wellichan, Michelle Maia Mendonça\",\"doi\":\"10.26673/TES.V16I1.13743\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"This is a follow-up field study on the evolution of cognitive and psychomotor development of a child with total congenital deafblindness and Patau Syndrome, attending at a Specialized Care Center - Deafblindness in the interior of the State of Parana. The child was identified as AC to guarantee the identity. The objective is to describe the child's performance in 2019 based on the methodology of Jan Van Dijk used for babies with deafblindness in pre-linguistic phase. Although the literature presents us with limited possibilities for these children, it was found that the professional must believe in early and continued stimulation to benefit the child's quality of life and allow hope for families. The results of Jan Van Dijk's methodology suggest that they are effective in individual care with the child, who favor alternative communication resources.\",\"PeriodicalId\":32032,\"journal\":{\"name\":\"Temas em Educacao e Saude\",\"volume\":\"1 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-06-19\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Temas em Educacao e Saude\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.26673/TES.V16I1.13743\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Temas em Educacao e Saude","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.26673/TES.V16I1.13743","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
这是一项关于一名患有完全先天性聋哑和帕托综合征的儿童认知和心理运动发展演变的后续实地研究,该儿童在巴拉那州内陆的聋哑专业护理中心接受治疗。该儿童被确认为AC,以保证其身份。目的是根据Jan Van Dijk用于语言前阶段聋哑婴儿的方法,描述孩子在2019年的表现。尽管文献向我们展示了这些孩子的有限可能性,但研究发现,专业人士必须相信早期和持续的刺激,以提高孩子的生活质量,并给家庭带来希望。Jan Van Dijk方法的结果表明,他们在对孩子的个人护理中是有效的,他们喜欢替代的沟通资源。
Desenvolvimento de uma criança com Síndrome de Patau em um Centro de Atendimento Especializado em Surdocegueira
This is a follow-up field study on the evolution of cognitive and psychomotor development of a child with total congenital deafblindness and Patau Syndrome, attending at a Specialized Care Center - Deafblindness in the interior of the State of Parana. The child was identified as AC to guarantee the identity. The objective is to describe the child's performance in 2019 based on the methodology of Jan Van Dijk used for babies with deafblindness in pre-linguistic phase. Although the literature presents us with limited possibilities for these children, it was found that the professional must believe in early and continued stimulation to benefit the child's quality of life and allow hope for families. The results of Jan Van Dijk's methodology suggest that they are effective in individual care with the child, who favor alternative communication resources.