走向残疾的批判性研究:从拉丁美洲对先天性寨卡综合征的理论视角

Q2 Social Sciences
Rosamund Greiner
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引用次数: 0

摘要

摘要怀孕期间感染寨卡病毒会导致残疾,但在先天性寨卡综合征(CZS)的研究中,残疾的理论仍然不足。现有的研究在很大程度上是探索性的和描述性的,因此需要更深入的分析。在应用理论的地方,与拉丁美洲理论观点的接触有限。残疾的社会结构,尤其是照顾者身份的社会结构值得进一步分析。理解残疾是通过“正常意识形态”构建的,有助于理解父母对CZS诊断的反应。在CZS的案例中,护理人员对有关残疾的生物医学叙述的抵制是显而易见的,值得进一步关注。已经考虑到护理关系中的社会位置和共享时间性如何塑造护理者身份。在这里,我一起阅读这些内容,以更全面地了解照顾者和他们所照顾的人是如何形成共同的化身的。将拉丁美洲批判性残疾研究与其他批判性理论观点结合起来进行分析,可以推进残疾理论以及照顾者在其社会、政治、经济和历史背景下的经历。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Towards Critical Studies of Disabilities: engaging Latin American theoretical perspectives on Congenital Zika Syndrome
Abstract Infection with the Zika virus during pregnancy can cause disability, yet disability remains under theorised in studies on Congenital Zika Syndrome (CZS). Existing studies are largely exploratory and descriptive in nature, and thus a deeper analysis is needed. Where theory has been applied, there is limited engagement with Latin American theoretical perspectives. The social construction of disability, and of caregiver identity in particular warrant further analysis. Understanding that disability is constructed through an ‘ideology of normality’ can help make sense of parents’ reactions to a diagnosis of CZS. Caregivers resistance to biomedical narratives about disability is apparent in the case of CZS and deserves further attention. Consideration has been given to the ways that social location and shared temporality in relationships of care shape caregiver identity. Here I read these together to reach a fuller understanding of how caregivers and the people they care for develop a shared embodiment. An analysis bringing together Latin American Critical Disability Studies with other critical theoretical perspectives can advance theorisations of disability and the experiences of caregivers in their social, political, economic and historical contexts.
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来源期刊
Horizontes Antropologicos
Horizontes Antropologicos Social Sciences-Anthropology
CiteScore
0.90
自引率
0.00%
发文量
39
审稿时长
20 weeks
期刊介绍: Horizontes Antropológicos is published twice yearly by the Department of Post-Graduate Studies in Social Anthropology at the Federal University of Rio Grande do Sul (UFRGS). Initiated in 1995, it represents the Department"s constant efforts to publish a high-quality academic journal of international reach. Each volume is organized around a theme, open to the plurality of interpretations and subjects of interest to anthropologists for the study of sociocultural phenomena. Each issue also includes a section entitled Espaço Aberto (Open Space), allowing space for works that are not directly related to the central theme.
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