Stakeholder-Engaged研究

IF 1.8 4区 医学 Q1 LINGUISTICS
K. Strong, N. Douglas, Rebecca Lynn Johnson, Maura Silverman, Jamie H. Azios, Brent E Archer
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引用次数: 1

摘要

有必要进行干预,以支持失语症患者的友谊。本文的目的是描述一个利益相关者参与的过程,该过程涉及研究人员、临床医生、失语症患者和护理伙伴,为此类干预提供信息。通过对非大学研究人员(研究过程中通常没有代表的人)的反思和第一手资料,我们分享了在利益相关者参与过程中学到的两个主要教训的细节:(1)可接触的参与和(2)团队通信。最后,我们描述了使用社交车队模型来支持关于友谊和失语症的讨论和参与的经验。我们认为,这一工具是该领域未来干预研究的一个考虑因素,以支持失语症患者交流他们的友谊优先事项和目标。尽管多利益相关者研究团队的丰富性已被记录在案,但我们希望本文提供了不常见的细节,从而阐明了这一过程。我们还希望提供一个透明的成本和时间说明,以确保利益相关者群体之间的公平。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Stakeholder-Engaged Research
There is a need for intervention to support friendship for people living with aphasia. The purpose of this article is to describe a stakeholder engagement process that involved researchers, clinicians, people living with aphasia, and care partners to inform such intervention. Through reflection and firsthand accounts of non–university-based researchers, people not typically represented in the research process, we share details of two main lessons learned throughout the stakeholder engagement journey: (1) accessible engagement and (2) team correspondence. Finally, we describe experiences with use of the Social Convoy Model to support discussion and engagement about friendship and aphasia. We argue that this tool be a consideration in future intervention research in this area to support people with aphasia communicating their friendship priorities and goals. Although the richness of multistakeholder research teams has been documented, we hope that this article provides detail that is not commonly shared thus illuminating the process. We also hope to provide a transparent account of the cost and time required to ensure equity across stakeholder groups.
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来源期刊
CiteScore
3.50
自引率
0.00%
发文量
26
期刊介绍: Topics in Language Disorders (TLD) is a double-blind peer-reviewed topical journal that has dual purposes: (1) to serve as a scholarly resource for researchers and clinicians who share an interest in spoken and written language development and disorders across the lifespan, with a focus on interdisciplinary and international concerns; and (2) to provide relevant information to support theoretically sound, culturally sensitive, research-based clinical practices.
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