{"title":"对口腔癌患者的心理援助。干预方案(Perrotta-Guerrieri造口患者心理护理,PCOP)和临床问卷(Perrotta-Guerrieri造口患者心理护理问卷-第一版,PCOP- q1)的提出","authors":"Perrotta Giulio, Guerrieri Emanuele","doi":"10.17352/2455-5479.000172","DOIUrl":null,"url":null,"abstract":"Ostomy patients are subject to significant negative psychological impact, affecting their quality of life in all respects (physical, psychological, social, economic, and spiritual), especially if they are not properly constructed or if there are complications during the recovery phase. In the light of published research and studies, the main problems are as follows: a) alteration of body image; loss of sphincter control; b) odor, leakage, and complications related to the stoma; c) impairment of sexuality; d) alteration of nutrition and sleep; e) anxiety, depression, and loneliness; embarrassment and shame; f) loss of control of the situation; drop in self-esteem; g) rejection; h) stigmatization; i) disinvestment in social activities; l) abandonment of work and sports activities; isolation; m) difficulties in couple relationships and social contacts. The psychological problems caused by ostomy can be avoided, or at least contained, by comprehensive care of the patient, both before and after the operation. In addition to purely technical care, teaching, accompaniment and constant support are the main components of care that can make a difference to how the patient will accept his or her ostomy. Setting the care only on the management of the physical dimension will hardly allow the person to integrate the ostomy into his life. The present work proposes a specific protocol of psychological intervention (Perrotta-Guerrieri Psychological Care for Ostomy Patients, PCOP), for all the clinical phases (pre-operative, operative, post-operative, follow-up) and a specific questionnaire (Perrotta-Guerrieri Psychological Care for Ostomy Patients Questionnaire - first version, PCOP-Q1) to be submitted to the patient which investigates the 9 subjective functions (physical, psychological, sexual, emotional, sentimental, work, family and social), in 45 items with a response on L1-5 scale, for the study of quality of life in the ostomised patient.","PeriodicalId":87221,"journal":{"name":"Archives of community medicine and public health","volume":" ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Psychological assistance to ostomate patients. Proposal of intervention protocol (Perrotta-Guerrieri Psychological Care for Ostomy Patients, PCOP) and clinical questionnaire (Perrotta-Guerrieri Psychological Care for Ostomy Patients Questionnaire – first version, PCOP-Q1)\",\"authors\":\"Perrotta Giulio, Guerrieri Emanuele\",\"doi\":\"10.17352/2455-5479.000172\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Ostomy patients are subject to significant negative psychological impact, affecting their quality of life in all respects (physical, psychological, social, economic, and spiritual), especially if they are not properly constructed or if there are complications during the recovery phase. In the light of published research and studies, the main problems are as follows: a) alteration of body image; loss of sphincter control; b) odor, leakage, and complications related to the stoma; c) impairment of sexuality; d) alteration of nutrition and sleep; e) anxiety, depression, and loneliness; embarrassment and shame; f) loss of control of the situation; drop in self-esteem; g) rejection; h) stigmatization; i) disinvestment in social activities; l) abandonment of work and sports activities; isolation; m) difficulties in couple relationships and social contacts. The psychological problems caused by ostomy can be avoided, or at least contained, by comprehensive care of the patient, both before and after the operation. In addition to purely technical care, teaching, accompaniment and constant support are the main components of care that can make a difference to how the patient will accept his or her ostomy. Setting the care only on the management of the physical dimension will hardly allow the person to integrate the ostomy into his life. The present work proposes a specific protocol of psychological intervention (Perrotta-Guerrieri Psychological Care for Ostomy Patients, PCOP), for all the clinical phases (pre-operative, operative, post-operative, follow-up) and a specific questionnaire (Perrotta-Guerrieri Psychological Care for Ostomy Patients Questionnaire - first version, PCOP-Q1) to be submitted to the patient which investigates the 9 subjective functions (physical, psychological, sexual, emotional, sentimental, work, family and social), in 45 items with a response on L1-5 scale, for the study of quality of life in the ostomised patient.\",\"PeriodicalId\":87221,\"journal\":{\"name\":\"Archives of community medicine and public health\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-03-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Archives of community medicine and public health\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.17352/2455-5479.000172\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Archives of community medicine and public health","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.17352/2455-5479.000172","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1
摘要
Ostomy患者会受到严重的负面心理影响,在各个方面(身体、心理、社会、经济和精神)影响他们的生活质量,尤其是如果他们的结构不正确或在康复阶段出现并发症。根据已发表的研究和研究,主要存在以下问题:(1)身体形象的改变;括约肌控制丧失;b) 与造口相关的气味、渗漏和并发症;c) 性障碍;d) 营养和睡眠的改变;e) 焦虑、抑郁和孤独;尴尬和羞耻;f) 失去对局势的控制;自尊下降;g) 拒绝;h) 污名化;i) 减少对社会活动的投资;l) 放弃工作和体育活动;隔离m) 夫妻关系和社会交往方面的困难。造口术引起的心理问题可以通过术前和术后对患者的全面护理来避免,或者至少可以得到控制。除了纯粹的技术护理外,教学、陪伴和持续支持是护理的主要组成部分,可以改变患者接受造口术的方式。仅仅把护理放在身体维度的管理上很难让人把造口术融入他的生活。本工作提出了一种特定的心理干预方案(Perrotta Guerrieri psychological Care for Ostomy Patients,针对所有临床阶段(术前、术中、术后、随访),并向患者提交一份特定的问卷(Perrotta Guerrieri Ostomy患者心理护理问卷-第一版,PCOP-Q1),该问卷调查了9种主观功能(身体、心理、性、情感、情感、工作、家庭和社会),在具有L1-5量表响应的45个项目中,用于造口术患者的生活质量研究。
Psychological assistance to ostomate patients. Proposal of intervention protocol (Perrotta-Guerrieri Psychological Care for Ostomy Patients, PCOP) and clinical questionnaire (Perrotta-Guerrieri Psychological Care for Ostomy Patients Questionnaire – first version, PCOP-Q1)
Ostomy patients are subject to significant negative psychological impact, affecting their quality of life in all respects (physical, psychological, social, economic, and spiritual), especially if they are not properly constructed or if there are complications during the recovery phase. In the light of published research and studies, the main problems are as follows: a) alteration of body image; loss of sphincter control; b) odor, leakage, and complications related to the stoma; c) impairment of sexuality; d) alteration of nutrition and sleep; e) anxiety, depression, and loneliness; embarrassment and shame; f) loss of control of the situation; drop in self-esteem; g) rejection; h) stigmatization; i) disinvestment in social activities; l) abandonment of work and sports activities; isolation; m) difficulties in couple relationships and social contacts. The psychological problems caused by ostomy can be avoided, or at least contained, by comprehensive care of the patient, both before and after the operation. In addition to purely technical care, teaching, accompaniment and constant support are the main components of care that can make a difference to how the patient will accept his or her ostomy. Setting the care only on the management of the physical dimension will hardly allow the person to integrate the ostomy into his life. The present work proposes a specific protocol of psychological intervention (Perrotta-Guerrieri Psychological Care for Ostomy Patients, PCOP), for all the clinical phases (pre-operative, operative, post-operative, follow-up) and a specific questionnaire (Perrotta-Guerrieri Psychological Care for Ostomy Patients Questionnaire - first version, PCOP-Q1) to be submitted to the patient which investigates the 9 subjective functions (physical, psychological, sexual, emotional, sentimental, work, family and social), in 45 items with a response on L1-5 scale, for the study of quality of life in the ostomised patient.