评估长期状况问卷(LTCQ)在妇女怀孕期间和出生后第一年的有效性

IF 1.8 Q3 HEALTH CARE SCIENCES & SERVICES
L. Kelly, Ray Fitzpatrick, J. Kurinczuk, O. Rivero-Arias, F. Alderdice
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Tests of validity were performed including assessing correlations between the LTCQ and reference measures, the Well-being in Pregnancy (WiP) Questionnaire and the EuroQol EQ-5D-5L. Internal consistency was assessed using the Cronbach’s alpha statistic. Results All LTCQ items were considered relevant and appropriate for use with women who were pregnant or had given birth within the past year. The most commonly reported LTC among the online survey sample (n=718) was a mental health condition (n=350, 48.7%) followed by joint, bone and connective tissues (n= 212, 29.5%) and gastrointestinal (n=143, 19.9%) condition. Data indicated LTCQ scores behaved in a predictable pattern, demonstrating poorer scores for women reporting a greater number of LTCs; mean (SD) scores, one LTC= 61.86 (17.8), two LTCs= 55.29 (16.0), three LTCs= 49.84 (15.52) and four LTCs= 44.94 (12.2). 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引用次数: 0

摘要

本研究的目的是验证一种通用的患者报告的结果测量方法——长期状况问卷(LTCQ),该问卷适用于有长期病史(LTC)的孕妇和产后妇女。方法采用认知访谈法,对已有LTC的怀孕或分娩妇女(n=11)和孕产妇保健专业人员(n=11)进行访谈,探讨LTCQ项目的可接受性。随后,对怀孕或在过去一年内分娩并患有LTC的妇女(n=718)进行了一项在线调查。进行效度检验,包括评估LTCQ与参考测量、妊娠幸福感问卷和EuroQol EQ-5D-5L之间的相关性。内部一致性采用Cronbach 's alpha统计量进行评估。结果所有LTCQ项目均被认为适用于过去一年内怀孕或分娩的妇女。在线调查样本(n=718)中最常报告的LTC是精神健康状况(n=350, 48.7%),其次是关节、骨骼和结缔组织(n= 212, 29.5%)和胃肠道(n=143, 19.9%)状况。数据表明,LTCQ得分表现出可预测的模式,表明报告ltc数量较多的妇女得分较低;平均(SD)评分,1个LTC= 61.86(17.8), 2个LTC= 55.29(16.0), 3个LTC= 49.84(15.52), 4个LTC= 44.94(12.2)。与无精神健康状况的女性相比,至少有一种精神健康状况的女性得分也较低,平均得分= 66.18 (SD 16.7) vs 48.64 (SD 13.3), p<0.001。正如预期的那样,LTCQ分数与EQ-5D-5L和WiP分数在预期的方向上表现出显著的相关性。对于所有LTCQ项目,Cronbach 's alpha统计量为0.93。结论:本文提供的数据表明,LTCQ(评估患有一种或多种LTC的生活状况)适用于孕妇和产后妇女,无论是从妇女的角度还是从产科保健专业人员的角度来看。使用LTCQ将有助于确定这一高危人群中未满足的需求,并支持探索ltc如何在整个怀孕和产后期间影响妇女。了解这群妇女未满足的需求提供了一个机会,将产科服务中的专科护理联系起来,加强个性化护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth
Background The aim of this study was to validate a generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among pregnant and postpartum women living with a pre-existing long-term condition (LTC). Methods Cognitive interviews were conducted with women who were currently pregnant or had given birth within the past year and living with a pre-existing LTC (n=11) and with healthcare professionals working in maternal care (n=11) to explore the acceptability of LTCQ items. An online survey was subsequently administered among women who were pregnant or had given birth within the past year and living with a pre-existing LTC (n=718). Tests of validity were performed including assessing correlations between the LTCQ and reference measures, the Well-being in Pregnancy (WiP) Questionnaire and the EuroQol EQ-5D-5L. Internal consistency was assessed using the Cronbach’s alpha statistic. Results All LTCQ items were considered relevant and appropriate for use with women who were pregnant or had given birth within the past year. The most commonly reported LTC among the online survey sample (n=718) was a mental health condition (n=350, 48.7%) followed by joint, bone and connective tissues (n= 212, 29.5%) and gastrointestinal (n=143, 19.9%) condition. Data indicated LTCQ scores behaved in a predictable pattern, demonstrating poorer scores for women reporting a greater number of LTCs; mean (SD) scores, one LTC= 61.86 (17.8), two LTCs= 55.29 (16.0), three LTCs= 49.84 (15.52) and four LTCs= 44.94 (12.2). Poorer scores were also reported for women living with at least one mental health condition compared to those reporting no mental health condition, mean score = 66.18 (SD 16.7) v 48.64 (SD 13.3), p<0.001 respectively. As anticipated, LTCQ scores demonstrated significant correlations in the expected direction with both the EQ-5D-5L and WiP scores. For all LTCQ items, the Cronbach’s alpha statistic was 0.93. Conclusion Data presented here indicate that the LTCQ, which assesses living well with one or more LTC, is suitable for use among pregnant and postpartum women, from both the woman’s perspective and from the perspectives of maternity healthcare professionals. Use of the LTCQ would facilitate the identification of unmet needs within this high-risk cohort and support the exploration of how LTCs may affect women throughout the pregnancy and post-natal period. Understanding unmet needs within this cohort of women provides an opportunity to link up specialist care within maternity services and enhance personalised care.
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来源期刊
Patient Related Outcome Measures
Patient Related Outcome Measures HEALTH CARE SCIENCES & SERVICES-
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