通过马斯洛需求层次的视角理解患有罕见疾病儿童兄弟姐妹的精神和情感需求

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2021-04-19 DOI:10.1080/1364436X.2021.1919061

S. Nash, P. Nash, L. Bryson, S. Gray

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引用次数: 1

摘要

伯明翰儿童医院儿科精神护理中心开展了一项混合方法研究项目，共有16名参与者，重点关注8-16岁兄弟姐妹患有慢性罕见疾病的儿童的精神和情感需求。包括三种研究工具:Kidscreen 52健康相关生活质量问卷(代理版)、1-1半结构化访谈和焦点小组。这些数据是通过马斯洛的需求层次理论和奈对它们的解释来看待的。主要发现表明，有一个生病的孩子会影响健康的孩子在马斯洛层次结构的所有领域，尤其是尊重和自我实现的需求。建议早期干预，以支持健康的兄弟姐妹，以寻求改善对精神和情感需求的影响，有一个长期患病的兄弟姐妹。宣传和提高认识是有益的。

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Understanding the spiritual and emotional needs of siblings of children who have a rare disease through the lens of Maslow’s hierarchy of needs

ABSTRACT This mixed methods research project with 16 participants focused on the spiritual and emotional needs of 8–16 year olds who had a sibling with a chronic rare disease was undertaken by the Centre for Paediatric Spiritual Care at Birmingham Children’s Hospital. Three research tools were included: Kidscreen 52 Health-related quality of life questionnaire with proxy version, 1–1 semi-structured interviews and focus groups. The data was viewed through the lens of Maslow’s Hierarchy of Needs and Nye’s interpretation of them. Key findings showed that having a sick child impacted the well child in all the areas of Maslow’s hierarchy but particularly esteem and self-actualisation needs. Early interventions are recommended to support the well sibling to seek to ameliorate the impact on spiritual and emotional needs of having a chronically sick sibling. Advocacy and awareness raising is beneficial.

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.