Edukacja Pub Date : 2018-12-31 DOI:10.24131/3724.180408
Agnieszka Kamyk-Wawryszuk
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引用次数: 0

摘要

本研究的目的是描述受罕见遗传疾病影响的儿童的教育需求,这些疾病导致非自发性语言发育迟缓和智力残疾。本研究采用个案研究的定性研究方法。研究对象为两名诊断为罕见病(Cri du Chat综合征和III型粘多糖病)的学龄前男孩,患有中度智力残疾和语言发育迟缓。所进行的研究确定,诊断出的需求应该包括在现有的特殊需求目录中,但他们的概况以及他们的识别过程具有个性化的特征。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Potrzeby edukacyjne dzieci w wieku przedszkolnym z niesamoistnym opóźnieniem rozwoju mowy i z rozpoznaną chorobą rzadką. Studia przypadków chłopców z zespołem Cri du Chat i mukopolisacharydozą typu III
The purpose of this research was to describe the educational needs of children affected by rare genetic diseases resulting in nonspontaneous speech development delay and intellectual disability. The research adopted a qualitative approach using the case study method. The study subjects were two pre-school aged boys diagnosed with rare diseases (Cri du Chat syndrome and type III mucopolysaccharidosis), who functioned with moderate intellectual disability and delayed speech development. The conducted research determined that the diagnosed needs should be included in the existing special needs catalogue, but their profile as well as the process of their identification has an individualized character.
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