土耳其父母在儿童姑息治疗中遇到的困难:一项探索性定性研究。

IF 1.5 4区 心理学 Q3 PSYCHOLOGY, MULTIDISCIPLINARY
Omega-Journal of Death and Dying Pub Date : 2024-11-01 Epub Date: 2022-04-26 DOI:10.1177/00302228221097291
Tülay Kuzlu Ayyildiz, Aylin Kurt, Aysel Topan, Hülya Kulakçı Altıntaş, Funda Veren, Fadime Üstüner Top
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引用次数: 0

摘要

在土耳其进行的这项定性研究中,我们旨在确定儿科姑息治疗患者父母的困难,以及他们如何应对这些问题。这项研究是通过深入访谈的方式对20位家长进行的。内容分析用于数据分析。确定了四个主题:接受过程中的问题、在医院的困难、卫生工作人员的期望、应对策略。这些家庭在应对孩子的临终时遇到了困难。未来的研究可能会集中在以家庭为中心的护理的有效性以及父母实施该护理的经验上。研究结果表明,社会支持资源和应对策略可以在接受儿童的疾病过程和有效维持姑息治疗方面发挥重要作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study.

We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively.

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来源期刊
CiteScore
4.10
自引率
20.00%
发文量
259
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