Évaluation-Cognition-Polyhandicap (ECP) : apports d’une approche qualitative dans l’élaboration et la validation d’un outil

Background

Setting up a personalised project for any person with profound intellectual and multiple disabilities (PIMD) requires an evaluation of their cognitive skills. Nevertheless an international literature review highlights: a lack of adequate tools for evaluation of the cognitive skills of people with PIMD; the need to create standardised protocols. In 2009, Scelles et al. proposed the P2CJP–Profil de Compétences Cognitives du Jeune Polyhandicapé. This tool was designed for children up to 14 years of age. In 2017, this scale has been revised and extended to the adults, and called ECP (Evaluation-Cognition-PIMD).

Method

To elaborate and validate this tool, a statistical methodology has been combined with a qualitative process close to professionals and parents. The aim was to assess the relevance and the ergonomic of the ECP, the comprehension of items, the facility of use, the guideline and at least the effects regarding the practice.

Results

The qualitative analyse of user backgrounds, at all validation stages, let adapt the ECP as well on the content as on the form. This work reveals the necessity to continue to adapt the ECP through interactions between users and searchers.