边缘型人格障碍患者对重要他人的支持需求——瑞典的一项重点小组研究。

IF 1.9 4区 医学 Q2 NURSING
Scandinavian Journal of Caring Sciences Pub Date : 2024-03-01 Epub Date: 2023-10-17 DOI:10.1111/scs.13221
Susanne Ekdahl, Elisabeth Carlson, Ewa Idvall, Kent-Inge Perseius
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引用次数: 0

摘要

背景:成为边缘型人格障碍(BPD)患者的重要他人(SO)会影响他们的健康。物质使用障碍、创伤后应激障碍、压力、恐惧、焦虑、抑郁、家庭负担和悲伤的发病率很高。一些针对BPD的特定疗法包括对SO的支持,但资源稀缺,为了参与支持,假设BPD患者也包括在这些疗法中。尽管SO支持已被证明是有帮助的,但它们都有相似的结构,并且只有一小群SO可以获得支持。目的:目的是从自身和医护人员的角度描述边缘型人格障碍患者的经历和对重要他人的支持需求。方法:通过两个焦点小组收集数据。其中一人向BPD患者提供五份SO,一人向五名医护人员提供。每组进行两次访谈,并对数据进行定性内容分析。该研究得到了隆德研究伦理委员会的批准(2016-1026)。结果:研究结果揭示了四个主题;不被医疗保健专业人员看到会产生绝望,被医疗保健专家看到会产生信任、支持体验——无论是有益的还是可耻的——以及从松散结构的支持到结构化支持小组的步骤。两个集团都表示需要进一步的支持,以补充现有的支持。结论:支持的需求是广泛的。研究结果表明,专业协调员旨在为与特定精神病治疗无关的SO和同伴支持团体提供支持,但仍以结构化的方式提供支持。因此,建议进一步研究这些对现有支持的补充。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Need of support for significant others to persons with borderline personality disorder-A Swedish focus group study.

Background: Being a significant other (SO) to a person with borderline personality disorder (BPD) affect their health. High incidence of substance use disorder, post-traumatic stress disorder, stress, fear, anxiety, depression, family burden and grief are common. Some specific therapies for BPD, have included support to SOs, however resources are scarce and to participate in the support it assumes that the person with BPD is included in these therapies. Although the SO support has been shown to be helpful, they all have a similar structure, and only a small exclusive group of SOs have access to the support.

Aim: The aim was to describe experiences and need of support for significant others to persons with borderline personality disorder from the perspective of themselves and of health care workers.

Methods: Data was collected via two focus groups. One with five SOs to persons with BPD, one with five health care workers. Two interview sessions in each group were conducted and data were analysed with qualitative content analysis. The study was approved by the research ethics committee of Lund (2016-1026).

Results: The results revealed four themes; not being seen by health care professionals creates hopelessness, being seen by healthcare professionals creates trust, experience of support - helpful or shameful and the step from loosely structured support to a structured support group. Both groups expressed a need for further support as a complement to already existing support.

Conclusions: The need of support is extensive. The results suggest a professional coordinator intended for SOs and peer support groups not linked to a particular psychiatric treatment yet offering support in a structured way. Further studies examining these complements to existing support, is therefore recommended.

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来源期刊
CiteScore
4.60
自引率
5.30%
发文量
71
期刊介绍: Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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