在医院做父母和在家做病人的复杂性:癌症父母对养育问题和挑战的定性研究。

IF 2.4 3区 医学 Q1 NURSING
Cancer Nursing Pub Date : 2025-01-01 Epub Date: 2023-09-21 DOI:10.1097/NCC.0000000000001276
Maria Romare Strandh, Emma Hovén, Renita Sörensdotter, Karin Stålberg, Pia Enebrink, Lisa Ljungman, Anna Wikman
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引用次数: 0

摘要

背景:被诊断为癌症的父母必须平衡他们的疾病需求和照顾责任。这可能会导致父母的压力,并对整个家庭的幸福产生负面影响。更好地了解癌症父母的经历对于提供足够的支持是必要的。目的:本研究旨在探讨癌症父母在照顾18岁以下受抚养儿童时的育儿问题和挑战。方法:对22位癌症家长进行半结构化访谈。访谈被录音、转录,并使用主题分析进行分析。结果:父母的担忧和挑战影响了父母的父母角色和日常家庭生活。三个总体主题描述了作为父母和患者在平衡生活方面的斗争:作为癌症患者的父母,应对双重角色,癌症对养育子女的影响,以及对家庭生活的影响。父母的主要关注点是孩子的幸福,他们努力管理自己对养育子女的期望和对自己在家庭中角色的要求。结论:研究结果突出了癌症父母在照顾受抚养儿童时的复杂性。为了在癌症之旅中支持父母,了解他们的疾病对父母角色和家庭的影响是很重要的。对实践的影响:支持父母对自己的父母角色感到安全,并在他们的癌症之旅中为他们提供支持,应纳入癌症常规护理,解决养育问题和挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Complexity of Being a Parent in the Hospital and a Patient at Home: A Qualitative Study on Parenting Concerns and Challenges Among Parents With Cancer.

Background: Parents given a diagnosis of cancer must balance the demands of their illness and caregiving responsibilities. This can result in parental stress and have a negative impact on the well-being of the whole family. A greater understanding of the experiences of parents with cancer is necessary to provide adequate support.

Objective: The aim of this study was to explore parenting concerns and challenges among parents with cancer who were caring for dependent children younger than 18 years.

Methods: Semistructured interviews were carried out with 22 parents with cancer. Interviews were audio-recorded, transcribed, and analyzed using thematic analysis.

Results: Parental concerns and challenges affected parents in their parental role and their everyday family life. Three overarching themes described the struggles in balancing life as a parent and as a patient: navigating dual roles as a parent with cancer , impact of cancer on parenting , and impact on family life . Parents' primary focus was on their children's well-being, and they struggled to manage their own expectations of parenting and the demands on their role in the family.

Conclusion: The results highlight the complexity of being a parent with cancer while caring for dependent children. To support parents during the cancer journey, it is important to understand the consequences of their illness on their parental role and the family.

Implications for practice: Supporting parents to feel secure in their parental role and providing support to them during their cancer journey should be integrated into routine cancer care, where parenting concerns and challenges are addressed.

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来源期刊
Cancer Nursing
Cancer Nursing 医学-护理
CiteScore
4.80
自引率
3.80%
发文量
244
审稿时长
6-12 weeks
期刊介绍: Each bimonthly issue of Cancer Nursing™ addresses the whole spectrum of problems arising in the care and support of cancer patients--prevention and early detection, geriatric and pediatric cancer nursing, medical and surgical oncology, ambulatory care, nutritional support, psychosocial aspects of cancer, patient responses to all treatment modalities, and specific nursing interventions. The journal offers unparalleled coverage of cancer care delivery practices worldwide, as well as groundbreaking research findings and their practical applications.
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