“与疫情开始时大不相同”:改善医疗复杂儿童家庭护理系统的经验教训。

IF 1.3 4区 医学 Q3 NURSING
Vanessa C Fong, Jennifer Baumbusch, Koushambhi Basu Khan
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引用次数: 0

摘要

2019冠状病毒病(新冠肺炎)给每个人带来了前所未有的挑战,尤其是那些在日常生活中依赖全面的卫生和社会服务的复杂医学儿童(MC)的家庭。然而,尽管如此,探索护理人员在疫情期间获得卫生和社会服务的角度的研究有限。为了解决这一差距,我们旨在探索卫生和社会服务如何更好地满足患有MC的儿童及其家庭的需求。2021年7月至2022年4月,加拿大不列颠哥伦比亚省的16名父母及其患有MC的孩子(从出生到18岁)参加了半结构化访谈。研究结果揭示了改善MC儿童家庭服务的两个不同领域,即与技术和以家庭为中心的护理有关的领域。家长们优先考虑扩大数字通信工具的使用,以支持服务导航和日程安排。虚拟平台被认为对与其他家庭及其社区建立联系很有价值。在以家庭为中心的护理方面,父母强调了承认家庭身体、情感和经济需求的政策的重要性。研究结果对改善服务以提高MC儿童及其家庭的福祉和生活质量具有重要意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"A very different place from when the pandemic started": Lessons learned for improving systems of care for families of children with medical complexity.

Coronavirus disease 2019 (COVID-19) created unprecedented challenges for everyone, but especially families of children with medical complexity (MC) who rely on a comprehensive range of health and social services in their daily lives. Yet despite this, there are limited studies exploring caregiver perspectives regarding access to health and social services during the pandemic. To address this gap, we aimed to explore how health and social services can better meet the needs of children with MC and their families. Sixteen parents residing with their children with MC (from birth to 18 years) in British Columbia, Canada participated in semi-structured interviews between July 2021 and April 2022. Findings revealed two different areas to improve services for families of children with MC, those relating to technology and family-centered care. Parents prioritized expanding the use of digital communication tools to support service navigation and scheduling. Virtual platforms were viewed as being valuable for building connections with other families and their community. In terms of family-centered care, parents emphasized the importance of policies recognizing the physical, emotional, and financial needs of the family. Findings have important implications for improving services to enhance the well-being and quality of life of children with MC and their families.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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