满足脊柱侧凸患儿家长的需求:一项定性描述性研究。

IF 2.2 Q1 NURSING
Global Qualitative Nursing Research Pub Date : 2021-11-14 eCollection Date: 2021-01-01 DOI:10.1177/23333936211045058
Leanne R Willson, Laura G Rogers, Nicole Gingrich, Kathleen Shearer, Sarah Southon Hryniuk
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引用次数: 2

摘要

脊柱侧凸患儿的父母的需求是复杂的,并取决于他们孩子的治疗。本研究的目的是确定脊柱侧凸患儿家长的需求。这种定性描述涉及对处于不同治疗阶段的儿童的父母的访谈。为了方便起见,我们对16位父母(12位母亲、2位父亲和2位继父)进行了有目的的访谈;访谈记录和分析采用专题分析。父母的需求包括:需要可靠的医疗信息;希望获得有关补充治疗的信息;希望在支持和倡导自己的孩子方面得到帮助;需要保护儿童和家庭;寻求联系和支持。虽然许多家长的需求得到了满足,但本研究建议,护理角色的目的是为父母提供可靠的医疗信息,讨论替代治疗方法,协助父母支持他们的孩子,帮助父母进行宣传工作,并向父母介绍适当的联系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Meeting the Needs of Parents of Children With Scoliosis: A Qualitative Descriptive Study.

Meeting the Needs of Parents of Children With Scoliosis: A Qualitative Descriptive Study.

Needs of parents with children with scoliosis are complex and depend on their child's treatments. The purpose of this study was to identify needs of parents with children with scoliosis. This qualitative description involved interviews with parents of children at various stages of treatment. A convenience, then purposeful sample of 16 parents (12 mothers, two fathers, and two stepfathers) was interviewed; interviews were transcribed and analyzed using thematic analysis. Parents' needs included: Needing reliable medical information; Desiring information on complementary treatments; Wanting help in supporting and advocating for their child; Needing to protect the child and family; and Seeking connection and support. Although many parents' needs are being met, this study recommends a nursing role aimed at providing parents with reliable medical information, discussing alternative treatments, assisting parents in their role of supporting their child, helping parents in their advocacy efforts, and referring parents to appropriate connections.

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来源期刊
CiteScore
2.90
自引率
5.90%
发文量
41
审稿时长
12 weeks
期刊介绍: Global Qualitative Nursing Research (GQNR) is a ground breaking, international, peer-reviewed, open-access journal focusing on qualitative research in fields relevant to nursing and other health professionals world-wide. The journal specializes in topics related to nursing practice, responses to health and illness, health promotion, and health care delivery. GQNR will publish research articles using qualitative methods and qualitatively-driven mixed-method designs as well as meta-syntheses and articles focused on methodological development. Special sections include Ethics, Methodological Development, Advancing Theory/Metasynthesis, Establishing Evidence, and Application to Practice.
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