唱歌和跳舞与神经肌肉状况:一项混合方法研究。

Adapted physical activity quarterly : APAQ Pub Date : 2021-10-01 Epub Date: 2021-09-03 DOI:10.1123/apaq.2020-0133
Danielle Peers, Lindsay Eales, Kelvin Jones, Aidan Toth, Hernish Acharya, Janice Richman-Eisenstat
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引用次数: 0

摘要

本研究的目的是评估一个为期15周的娱乐性舞蹈和歌唱项目对神经肌肉疾病患者的安全性和意义。在一种变革性的混合方法设计中,使用了肺功能测试、可穿戴技术(Hexoskin背心)的体积脉搏图、个性化神经肌肉生活质量评估(2.0版)和半结构化访谈。通过归纳、语义主题分析对访谈进行分析。虽然样本量很小(6名患有神经肌肉疾病的人),但作者没有发现安全问题的证据。有证据表明呼吸系统有所改善,吞咽和语言能力也有所改善。最显著的生活质量变化包括与虚弱、吞咽、人际关系和休闲有关的改善。参与者分享说,这个项目提供了有意义的社会联系,体现了技能和安全愉快的体育锻炼。作者了解到,对于那些影响呼吸的神经肌肉疾病患者来说,娱乐歌舞节目可能是一种安全且意义深远的活动。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Singing and Dancing With Neuromuscular Conditions: A Mixed-Methods Study.

The purpose of this study was to assess the safety and meaningfulness of a 15-week recreational dance and singing program for people with neuromuscular conditions. Within a transformative mixed-methods design, pulmonary function tests, plethysmography through wearable technology (Hexoskin vests), individualized neuromuscular quality-of-life assessments (version 2.0), and semistructured interviews were used. The interviews were analyzed through inductive, semantic thematic analysis. Although the sample sizes were small (six people with neuromuscular conditions), the authors found no evidence of safety concerns. There was evidence of respiratory improvements and reported improvements in swallowing and speech. The most notable quality-of-life changes included improvements related to weakness, swallowing, relationships, and leisure. The participants shared that the program offered meaningful social connection and embodied skills and safe and pleasurable physical exertion. The authors learned that recreational singing and dancing programs could be a safe and deeply meaningful activity for those with neuromuscular conditions that impact respiration.

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