COVID-19大流行信息的管理和数据共享。

IF 1.2 4区 生物学 Q4 CELL BIOLOGY
Frank Gao, Liang Tao, Yu Huang, Zhiquan Shu
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引用次数: 18

摘要

2019冠状病毒病(COVID-19)是由严重急性呼吸系统综合征冠状病毒2引起的一种持续的全球大流行。在过去10个月里,COVID-19已在全球造成100多万人死亡。在这场全球危机下,迫切需要共享和管理COVID-19信息的数据,这对于研究人员、流行病学家、医生、生物工程师、资助机构和政府共同努力开发新的疫苗、药物、方法、疗法和战略,以预防和治疗这一致命和迅速传播的疾病至关重要。COVID-19大流行信息包括医院或生物库的COVID-19患者生物标本资源数据库、患者电子病历、正在进行的该疾病临床试验和研究结果、与COVID-19相关的政策、指南和法规、COVID-19疫情跟踪记录等。本文对美国开发的当前管理和数据共享方法、工具、软件、网络和互联网系统进行了研究。研究发现,现有的数据共享和管理系统面临着数据去中心化、不一致性、安全和法律问题、有限的资金支持、国际交流、标准化和全球化等诸多挑战和问题。为了克服和解决这些问题,本文开发并提出了几种国内和国际数据共享与管理集成平台模型,以满足全球范围内前所未有的COVID-19大流行信息共享与研究需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Management and Data Sharing of COVID-19 Pandemic Information.

The coronavirus disease 2019 (COVID-19) is an ongoing global pandemic caused by severe acute respiratory syndrome coronavirus 2. During the past 10 months, COVID-19 has killed over 1 million people worldwide. Under this global crisis, data sharing and management of the COVID-19 information are urgently needed and critical for researchers, epidemiologists, physicians, bioengineers, funding agencies, and governments to work together in developing new vaccines, drugs, methods, therapeutics, and strategies for the prevention and treatment of this deadly and rapidly spreading disease. The COVID-19 pandemic information includes the database of COVID-19-patient biospecimen resources in hospitals or biorepositories, electronic patient health records, ongoing clinical trials and research results on this disease, policies, guidelines, and regulations related to COVID-19, and the COVID-19 outbreak tracking records, and so on. A study of the current management and data-sharing approaches, tools, software, network, and internet systems developed in the United States is conducted in this article. Based on this study, it is revealed that the existing data-sharing and management systems are facing many big challenges and problems associated with data decentralization, inconsistencies, security and legal issues, limited financial support, international communications, standardization, and globalization. To overcome and solve these problems, several integrated platform models for national and international data-sharing and management are developed and proposed in this article to meet the unprecedented need and demand for COVID-19 pandemic information sharing and research worldwide.

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来源期刊
Biopreservation and Biobanking
Biopreservation and Biobanking CELL BIOLOGY-MEDICAL LABORATORY TECHNOLOGY
CiteScore
3.30
自引率
12.50%
发文量
114
审稿时长
6-12 weeks
期刊介绍: Biopreservation and Biobanking is the first journal to provide a unifying forum for the peer-reviewed communication of recent advances in the emerging and evolving field of biospecimen procurement, processing, preservation and banking, distribution, and use. The Journal publishes a range of original articles focusing on current challenges and problems in biopreservation, and advances in methods to address these issues related to the processing of macromolecules, cells, and tissues for research. In a new section dedicated to Emerging Markets and Technologies, the Journal highlights the emergence of new markets and technologies that are either adopting or disrupting the biobank framework as they imprint on society. The solutions presented here are anticipated to help drive innovation within the biobank community. Biopreservation and Biobanking also explores the ethical, legal, and societal considerations surrounding biobanking and biorepository operation. Ideas and practical solutions relevant to improved quality, efficiency, and sustainability of repositories, and relating to their management, operation and oversight are discussed as well.
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