{"title":"【罕见自身免疫性和自身炎症性疾病网络中从儿科到成人医学的过渡护理】。","authors":"Muriel Herasse, Mélanie Romier, Véronique Hentgen, Agnès Duquesne, Jean-Paul Larbre, Hélène Maillard, Micheline Pha, Pascal Pillet, Héloïse Reumaux, Marie-Elise Truchetet, Sophie Georgin-Lavialle, Alexandre Belot","doi":"10.1051/medsci/2022107","DOIUrl":null,"url":null,"abstract":"<p><p>The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.</p>","PeriodicalId":519512,"journal":{"name":"Medecine sciences : M/S","volume":" ","pages":"686-692"},"PeriodicalIF":0.0000,"publicationDate":"2022-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"[The transitional care from pediatrics to adult medicine within the rare autoimmune and autoinflammatory diseases network].\",\"authors\":\"Muriel Herasse, Mélanie Romier, Véronique Hentgen, Agnès Duquesne, Jean-Paul Larbre, Hélène Maillard, Micheline Pha, Pascal Pillet, Héloïse Reumaux, Marie-Elise Truchetet, Sophie Georgin-Lavialle, Alexandre Belot\",\"doi\":\"10.1051/medsci/2022107\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.</p>\",\"PeriodicalId\":519512,\"journal\":{\"name\":\"Medecine sciences : M/S\",\"volume\":\" \",\"pages\":\"686-692\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-08-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medecine sciences : M/S\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1051/medsci/2022107\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/9/12 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medecine sciences : M/S","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1051/medsci/2022107","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/9/12 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
[The transitional care from pediatrics to adult medicine within the rare autoimmune and autoinflammatory diseases network].
The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.