{"title":"让非裔美国人参与精准医学时代的研究:我们所有人的研究计划倡议。","authors":"Mercy Ngosa Mumba, Betty Key, Alexandra Nancarrow, Madelyn Campbell, MacKenzie Robb","doi":"","DOIUrl":null,"url":null,"abstract":"<p><p>The purpose of this study was to increase awareness about the All of Us Research Program and to engage African-Americans who live in the Deep South in conversations about research. This was a quasi-experimental single group design with pre- and post-tests. Recruitment occurred via social media, radio and television advertisements, and in-person recruitment. A purposive convenience sample was used. Seventy adults (70) participated in the study. The social media campaigns reached 35,000 people. Prior to the study, 21% of participants had heard about the All of Us Research Program. After the event, there was a 10.8% increase in the likelihood of participants' willingness to share information about the program, and a 20% increase in the perception that the program was dedicated to engaging diverse communities in research. African-Americans are still skeptical about participating in research. However, with targeted intervention, many of them are willing to participate in research if it will improve their overall health and well-being.</p>","PeriodicalId":73847,"journal":{"name":"Journal of National Black Nurses' Association : JNBNA","volume":"31 2","pages":"39-44"},"PeriodicalIF":0.0000,"publicationDate":"2020-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Engaging African-Americans in Research in the Era of Precision Medicine: An All of Us Research Program Initiative.\",\"authors\":\"Mercy Ngosa Mumba, Betty Key, Alexandra Nancarrow, Madelyn Campbell, MacKenzie Robb\",\"doi\":\"\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The purpose of this study was to increase awareness about the All of Us Research Program and to engage African-Americans who live in the Deep South in conversations about research. This was a quasi-experimental single group design with pre- and post-tests. Recruitment occurred via social media, radio and television advertisements, and in-person recruitment. A purposive convenience sample was used. Seventy adults (70) participated in the study. The social media campaigns reached 35,000 people. Prior to the study, 21% of participants had heard about the All of Us Research Program. After the event, there was a 10.8% increase in the likelihood of participants' willingness to share information about the program, and a 20% increase in the perception that the program was dedicated to engaging diverse communities in research. African-Americans are still skeptical about participating in research. However, with targeted intervention, many of them are willing to participate in research if it will improve their overall health and well-being.</p>\",\"PeriodicalId\":73847,\"journal\":{\"name\":\"Journal of National Black Nurses' Association : JNBNA\",\"volume\":\"31 2\",\"pages\":\"39-44\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of National Black Nurses' Association : JNBNA\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of National Black Nurses' Association : JNBNA","FirstCategoryId":"1085","ListUrlMain":"","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Engaging African-Americans in Research in the Era of Precision Medicine: An All of Us Research Program Initiative.
The purpose of this study was to increase awareness about the All of Us Research Program and to engage African-Americans who live in the Deep South in conversations about research. This was a quasi-experimental single group design with pre- and post-tests. Recruitment occurred via social media, radio and television advertisements, and in-person recruitment. A purposive convenience sample was used. Seventy adults (70) participated in the study. The social media campaigns reached 35,000 people. Prior to the study, 21% of participants had heard about the All of Us Research Program. After the event, there was a 10.8% increase in the likelihood of participants' willingness to share information about the program, and a 20% increase in the perception that the program was dedicated to engaging diverse communities in research. African-Americans are still skeptical about participating in research. However, with targeted intervention, many of them are willing to participate in research if it will improve their overall health and well-being.