让非裔美国人参与精准医学时代的研究:我们所有人的研究计划倡议。

Mercy Ngosa Mumba, Betty Key, Alexandra Nancarrow, Madelyn Campbell, MacKenzie Robb
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引用次数: 0

摘要

这项研究的目的是提高人们对“我们所有人”研究项目的认识,并让生活在南方腹地的非裔美国人参与到研究对话中来。这是一个准实验的单组设计,有前后测试。招聘通过社交媒体、广播电视广告和现场招聘进行。使用了有目的的方便样本。70名成年人(70人)参与了这项研究。社交媒体活动吸引了3.5万人。在这项研究之前,21%的参与者听说过“我们所有人”研究项目。活动结束后,参与者愿意分享项目信息的可能性增加了10.8%,项目致力于吸引不同社区参与研究的感觉增加了20%。非裔美国人仍然对参与研究持怀疑态度。然而,如果有针对性的干预,他们中的许多人愿意参与研究,如果这将改善他们的整体健康和福祉。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Engaging African-Americans in Research in the Era of Precision Medicine: An All of Us Research Program Initiative.

The purpose of this study was to increase awareness about the All of Us Research Program and to engage African-Americans who live in the Deep South in conversations about research. This was a quasi-experimental single group design with pre- and post-tests. Recruitment occurred via social media, radio and television advertisements, and in-person recruitment. A purposive convenience sample was used. Seventy adults (70) participated in the study. The social media campaigns reached 35,000 people. Prior to the study, 21% of participants had heard about the All of Us Research Program. After the event, there was a 10.8% increase in the likelihood of participants' willingness to share information about the program, and a 20% increase in the perception that the program was dedicated to engaging diverse communities in research. African-Americans are still skeptical about participating in research. However, with targeted intervention, many of them are willing to participate in research if it will improve their overall health and well-being.

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