当没有意志可以解释或沟通:在拉丁美洲的情况下,儿科安乐死在一个没有能力的未成年人与严重认知障碍的情况下。

IF 2.1 3区 哲学 Q2 ETHICS
Diego Borbón
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引用次数: 0

摘要

哥伦比亚宪法法院2025年的T-057号裁决解决了当代生物伦理学中最具道德要求的问题之一:对于一个从未拥有决策能力和沟通能力的病人来说,代孕要求的安乐死是否合理。该病例涉及16岁的青少年Mateo,他患有难治性癫痫、严重的肌张力障碍和严重的认知障碍,他的母亲代表他请求安乐死。法院驳回了这一具体请求,同时以违宪为由驳回了将智障未成年人排除在安乐死之外的规定,并下令进行全面的姑息治疗和监管改革。本文在哥伦比亚独特的由法官制定的协助死亡框架(全球少数完全通过司法裁决而不授权立法构建的制度之一)内考察了这个案例,并通过六个伦理视角考察了比较国际格局:原则、护理伦理、残疾人权利、天主教生命伦理、世俗自由主义和人权法。本文还简要回顾了2026年新的813号决议,该决议自那以后,尽管宪法法院下达了命令,但没有能力的病人却被排除在安乐死之外。它以一个微妙的评估结束:一个致力于人类尊严的法律秩序不能无限期地谴责一个未成年人遭受巨大的可观察到的痛苦,而没有治疗的前景,然而,这种立场需要对人权和患者权利进行特别的程序保护。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
When No Will Can Be Interpreted or Communicated: Paediatric Euthanasia in a Case of a Never-Competent Minor with Profound Cognitive Disability in a Latin American Context.

Colombia's Constitutional Court ruling T-057 of 2025 addresses one of the most morally demanding questions in contemporary bioethics: whether surrogate-requested euthanasia can ever be justified for a patient who has never possessed decisional and communicational capacity. The case concerned Mateo, a sixteen-year-old adolescent with refractory epilepsy, severe dystonia, and profound cognitive disability, whose mother requested euthanasia on his behalf. The Court denied the specific request while disapplying as unconstitutional the blanket exclusion of minors with intellectual disabilities from euthanasia access and ordered comprehensive palliative care and regulatory reform. This article examines the case within Colombia's unique judge-made assisted death framework-one of the few systems globally constructed entirely through judicial decisions without enabling legislation-and surveys the comparative international landscape through six ethical lenses: principlism, care ethics, disability rights, Catholic bioethics, secular liberalism, and human rights law. The paper also briefly reviews the new Resolution 813 of 2026 that has since excluded never-competent patients from euthanasia despite the Constitutional Court orders. It concludes with a nuanced assessment: a legal order committed to human dignity cannot indefinitely condemn a minor to immense observable suffering without therapeutic prospects, yet such a position demands extraordinary procedural protection for human rights and patients' rights.

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来源期刊
Journal of Bioethical Inquiry
Journal of Bioethical Inquiry 医学-医学:伦理
CiteScore
5.20
自引率
8.30%
发文量
67
审稿时长
>12 weeks
期刊介绍: The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies. The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following: -philosophy- bioethics- economics- social theory- law- public health and epidemiology- anthropology- psychology- feminism- gay and lesbian studies- linguistics and discourse analysis- cultural studies- disability studies- history- literature and literary studies- environmental sciences- theology and religious studies
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