Stefano Canali, Alessandro Falcetta, Massimo Pavan, Manuel Roveri, Viola Schiaffonati
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Big Data, Machine Learning, and Personalization in Health Systems: Ethical Issues and Emerging Trade-Offs.
The use of big data and machine learning has been discussed in an expanding literature, detailing concerns on ethical issues and societal implications. In this paper we focus on big data and machine learning in the context of health systems and with the specific purpose of personalization. Whilst personalization is considered very promising in this context, by focusing on concrete uses of personalized models for glucose monitoring and anomaly detection we identify issues that emerge with personalized models and show that personalization is not necessarily nor always a positive development. We argue that there is a new problem of trade-offs between the expected benefits of personalization and new and exacerbated issues - results that have serious implications for strategies of mitigation and ethical concerns on big data and machine learning.
期刊介绍:
Science and Engineering Ethics is an international multidisciplinary journal dedicated to exploring ethical issues associated with science and engineering, covering professional education, research and practice as well as the effects of technological innovations and research findings on society.
While the focus of this journal is on science and engineering, contributions from a broad range of disciplines, including social sciences and humanities, are welcomed. Areas of interest include, but are not limited to, ethics of new and emerging technologies, research ethics, computer ethics, energy ethics, animals and human subjects ethics, ethics education in science and engineering, ethics in design, biomedical ethics, values in technology and innovation.
We welcome contributions that deal with these issues from an international perspective, particularly from countries that are underrepresented in these discussions.