护理中的家:探索儿科/青少年姑息治疗环境中的家一样设计。

IF 1.2 3区 社会学 0 HUMANITIES, MULTIDISCIPLINARY
Sara Nourmusavi Nasab, Rebecca Mclaughlan, Chris L Smith
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引用次数: 0

摘要

本研究从医学和建筑专业人士的角度出发,探讨了在儿科/青少年姑息治疗住院病房中融入家庭般的设计元素。认识到年轻患者独特的发展和心理社会需求,本研究探讨了与“家”相关的空间和情感品质如何在姑息治疗环境中被解释和运作。本研究采用了多种方法,包括有针对性的文献综述、对7个国际儿科临终关怀设计的分析以及对22位医学和建筑领域专家的半结构化访谈。研究结果确定了支持性姑息治疗环境设计的两个中心主题:(1)支持性常态时刻,强调日常生活、社会联系和熟悉活动在促进情感健康方面的重要性;(2)家的建筑特征,强调空间布局、材料和美学元素,唤起家的舒适和熟悉感。在学科之间观察到一个关键的分歧:医学专业人士强调护理的情感和社会方面,而建筑师优先考虑空间配置和材料。此外,该研究还讨论了在创造像家一样的环境时,年幼的儿童和青少年的设计方法是如何不同的。对比表明需要更综合的设计策略,以平衡临床功能与情感和社会福祉。限制包括缺乏来自年轻患者和家庭的直接投入,以及对“家”的文化解释的有限探索。未来的研究应解决这些差距,为儿科姑息治疗更具包容性和整体性的设计方法提供信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The home within care: exploring home-like design in paediatric/adolescent palliative care environments.

This study explores the integration of home-like design elements in paediatric/adolescent palliative care inpatient units, drawing on perspectives from both medical and architectural professionals. Recognising the unique developmental and psychosocial needs of young patients, this research explores how the spatial and emotional qualities associated with 'home' are interpreted and operationalised in palliative care environments. A multimethod approach was employed, including a targeted literature review, analysis of seven international paediatric hospice design and semistructured interviews with 22 experts from the medical and architectural fields.The findings identify two central themes in the design of supportive palliative care settings: (1) Supporting Moments of Normalcy, which highlights the importance of daily routines, social connections and familiar activities in fostering emotional well-being, and (2) Architectural Features of Home, which addresses spatial layout, materiality and aesthetic elements that evoke comfort and familiarity of home.A key divergence was observed between the disciplines: medical professionals emphasised the emotional and social aspects of care, while architects prioritised spatial configuration and material considerations. Additionally, the study discusses how design approaches may vary between younger children and adolescents in creating home-like environments. The contrast points to the need for more integrated design strategies that balance clinical functionality with emotional and social well-being. Limitations include the lack of direct input from young patients and families, as well as a limited exploration of cultural interpretations of 'home'. Future research should address these gaps to inform more inclusive and holistic design approaches in paediatric palliative care.

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来源期刊
Medical Humanities
Medical Humanities HUMANITIES, MULTIDISCIPLINARY-
CiteScore
2.60
自引率
8.30%
发文量
59
期刊介绍: Occupational and Environmental Medicine (OEM) is an international peer reviewed journal concerned with areas of current importance in occupational medicine and environmental health issues throughout the world. Original contributions include epidemiological, physiological and psychological studies of occupational and environmental health hazards as well as toxicological studies of materials posing human health risks. A CPD/CME series aims to help visitors in continuing their professional development. A World at Work series describes workplace hazards and protetctive measures in different workplaces worldwide. A correspondence section provides a forum for debate and notification of preliminary findings.
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