南非多发性硬化症员工的工作场所叙述。

IF 1.5 Q4 HEALTH CARE SCIENCES & SERVICES
African Journal of Disability Pub Date : 2025-09-17 eCollection Date: 2025-01-01 DOI:10.4102/ajod.v14i0.1725
Armand Bam, Marco Bekker, Linda Ronnie
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引用次数: 0

摘要

背景:对于患有多发性硬化症(MS)等慢性疾病的员工,工作场所的包容仍然是一个挑战,因为症状的偶发性和不可见性,导致耻辱、披露困境和不适当的住宿。传统的残疾包容方法往往不能解决多发性硬化症员工的生活现实,需要更深入地探索个人和组织如何围绕残疾和包容构建意义。目的:本研究利用语义制造理论和残疾社会模型,探讨MS员工如何体验工作场所包容、自我管理和信息披露。该研究还采用了反思性方法,将员工的声音集中起来,为雇主和残疾人权益倡导者提供可操作的见解。方法:采用探索性质的研究设计,对13名在南非被诊断为多发性硬化症的员工进行半结构化访谈。专题分析用于确定与工作场所适应性、披露和支助结构有关的模式。研究者的反身性是为了承认研究的位置性,增强研究的深度。结果:工作场所适应性,包括灵活的工作安排和同理心领导,在确保多发性硬化症患者融入工作环境方面发挥了关键作用。然而,受耻辱感和职场文化的影响,披露信息仍然是一个复杂的决定。心理安全和主动组织感知显著影响员工体验。结论:要实现有意义的工作场所包容,组织必须超越合规驱动的政策,并营造一个让MS员工感到被重视和支持的环境。贡献:本研究整合了自反性、意义制造理论和残疾的社会模型,为残疾包容的话语提供了有价值的贡献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Workplace narratives of South African employees with multiple sclerosis.

Background: Workplace inclusion for employees with chronic conditions such as multiple sclerosis (MS) remains a challenge because of the episodic and invisible nature of symptoms, leading to stigma, disclosure dilemmas and inadequate accommodations. Traditional approaches to disability inclusion often fail to address the lived realities of employees with MS, necessitating a deeper exploration of how individuals and organisations construct meaning around disability and inclusion.

Objectives: This study explores how employees with MS experience workplace inclusion, self-management and disclosure drawing on sensemaking theory and the Social Model of Disability. The study also employs a reflexive approach, centring the voices of employees to generate actionable insights for employers and disability advocates.

Method: An exploratory qualitative research design was adopted involving semi-structured interviews with 13 employees diagnosed with MS in South Africa. Thematic analysis was used to identify patterns related to workplace adaptability, disclosure and support structures. Researcher reflexivity was incorporated to acknowledge positionality and enhance the study's depth.

Results: Workplace adaptability, including flexible work arrangements and empathetic leadership, play a critical role in ensuring inclusion for individuals with MS in the work environment. However, disclosure remains a complex decision influenced by stigma and workplace culture. Psychological safety and proactive organisational sensemaking significantly impact employees' experiences.

Conclusion: For meaningful workplace inclusion, organisations must move beyond compliance-driven policies and foster an environment where employees with MS feel valued and supported.

Contribution: By integrating reflexivity, sensemaking theory and the Social Model of Disability, this study offers valuable contributions to the discourse on disability inclusion.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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