发展一个支持计划的父母与癌症的孩子:专家共识使用德尔菲法。

IF 2
Maïté Vandooren, Clarisse Dibao-Dina, Emmanuel Gyan
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引用次数: 0

摘要

父母的癌症破坏了家庭的活力。父母患有癌症的孩子可能会患上照顾者负担综合症,包括身体和心理症状。他们几乎没有什么支持项目。在法国,这些节目主要是讨论小组。方法本工作的目的是为未成年人照顾者制定一个支持方案。第一步是进行系统的文献综述,然后采用德尔菲法达成共识。结果在文献综述步骤中共检索到26篇文献。共鉴定出57个项目。两份调查问卷(一份针对儿童,一份针对青少年)通过电子邮件发送给14名专家,他们分别是全科医生、肿瘤学家、心理学家或儿科护士。经过四轮讨论,专家们对每个问题都达成了共识。项目通过是-否量表进行评估。如果一个问题获得超过70%的选票,这个共识就有效。会议的数量、长度和内容以及其组织所需的医疗保健专业人员由协商一致决定。下一步将是实施基于这种方法的支持计划,并在现实生活中进行测试,以评估其影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of a Support Program for Children of Parents With Cancer: Expert Consensus Using the Delphi Method.

IntroductionParental cancer disrupts family dynamics. Children who have parents suffering from cancer may suffer from caregiver burden syndrome, including physical and psychological symptoms. Few support programs are available for them. In France, these programs are mainly discussion groups.MethodsThe aim of this work was to elaborate a support program for young minor caregivers. The first step was to conduct a systematic literature review, followed by the Delphi method to reach a consensus.Results26 articles were retrieved during the literature review step. 57 items were identified. Two questionnaires (one for children and one for teenagers) were sent by email to 14 experts, working as general practitioners, oncologists, psychologists, or pediatric nurses. After four rounds, experts reached a consensus for each question. Items were evaluated by a yes-no scale. The consensus was validated if a question obtained over 70% of votes. The number, length and content of the sessions, and the healthcare professionals required for their organization were determined by consensus.DiscussionThe next step will be to implement support programs based on this method and test them in real life to evaluate their impact.

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