脊髓损伤患者波斯语自我管理移动应用程序的开发与评估。

IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Amir Hossein Daeechini, Azamossadat Hosseini, Reza Rabiei, Saeed Oraee-Yazdani, Somayeh Paydar
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引用次数: 0

摘要

脊髓损伤(SCI)与复杂的并发症和长期残疾有关。鉴于这些患者的高采用率,移动医疗应用程序对于管理其并发症和挑战至关重要。虽然以前的研究已经开发并评估了其他语言和背景下SCI自我管理移动应用程序,但迄今为止,还没有针对伊朗和其他波斯语国家SCI患者独特需求的波斯语应用程序发表。本研究旨在通过20名脊髓损伤患者的参与,开发和评估自我管理移动应用程序的短期可用性。方法:本应用开发研究于2024年进行,分为设计开发阶段和可用性评估阶段。在第一阶段确定了应用程序的关键需求和所需的功能,并使用Microsoft Visio开发了概念模型。在第二阶段,使用MAUQ问卷对应用程序的可用性进行评估。结果:该应用程序的菜单服务包括自主神经反射障碍、皮肤护理、肠道管理、生活方式、膀胱管理和专家寻找模块。在SCI自助管理移动应用的可用性评价阶段,其可用性得分为78.7%,处于可接受的可用性水平。结论:在本研究中,应用程序的设计和开发是根据波斯语SCI参与者的需求量身定制的,以确保符合该人群的语言/文化要求和自我管理需求。因此,我们进行了可用性评估,以识别和解决潜在的问题,确保最终产品是全面的,有效地涵盖了SCI患者面临的大多数复杂性和挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Development and Evaluation of a Persian-Language Self-Management Mobile Application for People With Spinal Cord Injury

Development and Evaluation of a Persian-Language Self-Management Mobile Application for People With Spinal Cord Injury

Introduction

Spinal cord injury (SCI) is associated with complex complications and long-term disability. Mobile health applications are crucial for managing their complications and challenges, given their high adoption rate among these patients. While previous studies have developed and evaluated self-management mobile applications for SCI in other languages and contexts, to date, no Persian-language application tailored to the unique needs of individuals with SCI in Iran and other Persian-speaking countries has been published. This study aims to develop and evaluate the short-term usability of a self-management mobile application through the participation of 20 people with spinal cord injuries.

Methods

This applied developmental study was conducted in 2024 in two phases: the design and development phase and the usability evaluation phase. The application's key requirements and required capabilities were identified in the first phase, and a conceptual model was developed using Microsoft Visio. In the second phase, the application's usability was evaluated using the MAUQ questionnaire.

Results

The application's menu services included modules for autonomic dysreflexia, skin care, bowel management, lifestyle, bladder management and a specialist finder. In the usability evaluation phase of the SCI self-management mobile application, its usability score was 78.7%, signifying an acceptable level of usability.

Conclusion

In this study, the design and development of the application were tailored to the needs of Persian-speaking participants with SCI to ensure alignment with both the linguistic/cultural requirements and self-management needs of this population. Accordingly, usability evaluation was conducted to identify and address potential issues, ensuring that the final product is comprehensive and effectively covers most complications and challenges faced by individuals with SCI.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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