了解心肌梗死的负担和患者对治疗的偏好:一项通过在线调查评估患者观点的真实世界研究。

IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES
Journal of Patient-Centered Research and Reviews Pub Date : 2025-09-30 eCollection Date: 2025-01-01 DOI:10.17294/2330-0698.2146
M Cecilia Bahit, Serge Korjian, Gerald Chi, Yazan Daaboul, Alberto Castro Molina, Ginger Jiang, Christiana Dangas, Mudit Tandon, Deepak L Bhatt, Roxana Mehran, Harriette G C van Spall, Paul Nara, Alka Shaunik, Charles Michael Gibson
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引用次数: 0

摘要

目的:心肌梗死(MI)仍然与心血管事件复发和疾病负担的高风险相关。本研究评估了患者对心肌梗死后第一年疾病负担和治疗的看法。方法:通过在美国carity患者平台(10/30/2022-12/30/2022)上发布的自填在线问卷收集数据。只有前一年发生心肌梗死的患者才有资格纳入研究。结果:共151例患者完成调查。大多数为男性(69%),中位年龄为50岁,38%在过去90天内发生心肌梗死。总体而言,44%的患者出现心肌梗死后并发症,包括抑郁症(23%)、复发性心肌梗死(7%)和卒中(7%)。随访由普通/临床心脏病专家(67%)、介入性心脏病专家(38%)和普通医疗保健提供者(59%)提供。大多数患者(80%)报告参与了治疗决策。处方药物的数量被认为是心肌梗死后治疗负担的主要因素;大约42%的患者觉得记住吃药很乏味。心肌梗死后最常见的治疗目标是降低复发性心肌梗死的风险。此外,73%的患者认为改善生活质量是一个关键目标。总体而言,患者的情绪健康、身体健康和个人生活受到心肌梗死的影响尤为显著。“压力/焦虑/恐惧”是MI后最常报告的情绪,三分之一的人表示MI对他们的就业状况产生了负面影响。心肌梗死影响了74%患者的家庭财务状况,38%患者失去了收入。结论:心肌梗死给患者带来了巨大的负担。了解心梗后患者的经历可以加强以患者为中心的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding the Burden of Myocardial Infarction and Patient Preferences for Treatment: A Real-World Study Assessing Patients' Perspectives via an Online Survey.

Purpose: Myocardial infarction (MI) remains to be associated with a high risk of recurrent cardiovascular events and disease burden. This study assessed patient perspectives on the burden of disease and treatment in the first year post-MI.

Methods: Data were collected via a self-administered online questionnaire posted on the Carenity patient platform in the United States (10/30/2022-12/30/2022). Only patients who had an MI in the prior year were eligible for inclusion.

Results: A total of 151 patients completed the survey. The majority were men (69%), median age was 50 years, and 38% had an MI within the previous 90 days. Overall, post-MI complications were reported in 44% of the patients, including depression (23%), recurrent MI (7%), and stroke (7%). Follow-up care was provided by general/clinical cardiologists (67%), interventional cardiologists (38%), and general healthcare providers (59%). Most patients (80%) reported involvement in treatment decisions. The number of prescribed medications was considered the main contributor to post-MI treatment burden; approximately 42% of the patients found it tedious remembering to take their medications. The most commonly quoted post-MI treatment goal was recurrent MI risk reduction. Additionally, 73% of the patients considered improving quality of life to be a key goal. Overall, the patients' emotional well-being, physical well-being, and personal life were particularly impacted by MI. "Stress/anxiety/fear" was the most frequently reported emotion immediately post-MI, and one-third conveyed MI's negative impact on their employment status. MI impacted household finances in 74% of patients, with 38% losing income.

Conclusions: MI places a substantial burden on patients. Understanding patient experiences post-MI may enhance patient-centered care.

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来源期刊
Journal of Patient-Centered Research and Reviews
Journal of Patient-Centered Research and Reviews HEALTH CARE SCIENCES & SERVICES-
自引率
5.90%
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35
审稿时长
20 weeks
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