儿童姑息治疗中的道德困扰:巴西专业人员的横断面研究。

IF 1.4
Julianna Rodrigues Beltrão, Kelly Sales Zem, Luana da Rocha Celli, Carla Corradi-Perini
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引用次数: 0

摘要

医疗保健专业人员照顾患有严重疾病的儿童面临频繁的生物伦理冲突,往往导致道德困境。在儿科姑息治疗(PPC)中,这可能会损害专业福祉和护理质量。目的分析PPC专业人员的道德困境,并找出相关因素。方法横断面研究使用医疗保健专业人员道德困扰测量-巴西版(MMD-HP BR)量表,在线应用于PPC专业人员。结果共有112名专业人员参与调查,平均年龄41岁(±9.1)岁,女性占90.2%,东南地区占49%。平均从业经验为15年(±9.2年),PPC平均从业经验为6年(±4.3年)。大多数参与者是医生(55.4%)和护士(13.4%)。MMD-HP BR平均得分为104.2(±74.8)分,与职业显著相关(P = 0.045)。与护士(P = 0.014)、物理治疗师(P = 0.02)、内科医生(P = 0.002)和心理学家(P = 0.014)相比,护理技术人员的痛苦程度较低。在考虑离职、已经离职或正在考虑离职的专业人士中,得分更高。最具影响力的项目是:“我观察到卫生专业人员向病人或家属传达‘虚假的希望’ ”和“我观察到由于团队成员之间缺乏沟通而导致护理质量差”。结论PPC的道德困扰与沟通困难密切相关,沟通困难是影响专业人员体验的重要因素。儿科研究的缺乏,特别是在巴西,突出表明需要进一步研究,以制定支持团队福祉和提高向儿童和家庭提供的护理质量的战略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Moral Distress in Pediatric Palliative Care: A Cross-Sectional Study with Brazilian Professionals.

IntroductionHealthcare professionals caring for children with life-threatening illnesses face frequent bioethical conflicts, often leading to moral distress. In pediatric palliative care (PPC), this can compromise both professional well-being and quality of care.ObjectiveTo analyze moral distress among professionals in PPC and identify associated factors.MethodCross-sectional study using the Measure of Moral Distress for Healthcare Professionals - Brazilian Version (MMD-HP BR) scale, applied online to PPC professionals.ResultsA total of 112 professionals participated, mean age 41 years (±9.1), predominantly female (90.2%) and from the Southeast region (49%). Average professional experience was 15 years (±9.2), with 6 years (±4.3) in PPC. Most participants were physicians (55.4%) and nurses (13.4%). The mean MMD-HP BR score was 104.2 (±74.8), significantly correlated with profession (P = 0.045). Nursing technicians had lower distress compared to nurses (P = 0.014), physiotherapists (P = 0.02), physicians (P = 0.002) and psychologists (P = 0.014). Higher scores were found among professionals who had considered leaving, had left, or were considering leaving their jobs. The most impactful items were: "I observe health professionals communicating 'false hopes' to the patient or family" and "I observe poor quality care due to lack of communication between team members".ConclusionMoral distress in PPC is strongly linked to communication difficulties, a critical factor in professionals' experiences. The scarcity of studies in pediatrics, especially in Brazil, highlights the need for further research to develop strategies that support team well-being and improve the quality of care provided to children and families.

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