提供和提供文化和语言量身定制的心血管疾病和中风预防教育的挑战和机遇:一项定性探索性研究。

IF 3.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Sabine M. Allida, Della Maneze, Scott William, Maree Hackett, Caleb Ferguson
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引用次数: 0

摘要

背景:心血管疾病(CVD)和中风对文化和语言多样性(CALD)社区的影响不成比例,在这些社区,获得预防规划往往受到文化、语言和系统障碍的限制。了解卫生保健专业人员和非政府组织在向这些社区提供教育方面的经验,对于制定有效的、符合文化特点的战略以支持公平的心血管结局至关重要。目的:探讨(1)卫生保健专业人员、主要卫生网络和非政府组织提供心血管疾病或中风预防教育的经验;(ii)背景,即提供教育的障碍和促进因素;(iii)确定为CALD社区提供心血管疾病和中风预防教育和行为改变计划的核心组成部分和理想方法。设计:采用半结构化访谈的定性探索性研究。使用NVivo 15完成演绎主题分析。设置和参与者:通过Zoom招募和访谈了14名参与者;7名心血管和中风保健专业人员和7名来自联邦和州一级心血管和中风非政府组织和多元文化健康网络的代表。结果:确定了两个关键主题:(1)在提供和提供文化和语言量身定制的教育时面临的挑战;(2)理想教育计划的组成部分。在提供心血管疾病和中风预防教育方面面临的挑战包括需要驾驭不同的文化健康信仰和世界观,获得合格口译员的机会有限,以及缺乏与文化相关的翻译资源。理想的教育方案被认为是简单的、循证的、在文化上适当的,并以无障碍的、首选的形式提供。在课程之外持续改变行为的关键是家庭和社区的参与,从一开始就使用共同设计方法来促进所有权和相关性,建立信任,以及通过提醒不断加强教育内容。讨论和结论:尽管口译人员短缺和资金有限等系统性障碍仍然存在,但让家庭参与、赋予个人权力、量身定制的提供方法以及采用针对社区的策略,为提高心血管疾病和中风预防教育的参与度和覆盖面提供了明确的途径。结合这些因素,特别是通过共同设计,对于确保来自CALD社区的人的公平心血管结局至关重要。患者或公众贡献:有心血管疾病和中风生活经历的成年人通过非正式讨论参与了本研究的概念化过程。临床医生和最终用户组织的代表作为研究的参与者参与其中。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Challenges and Opportunities in Delivering and Providing Culturally and Linguistically Tailored Cardiovascular Disease and Stroke Prevention Education: A Qualitative Exploratory Study

Challenges and Opportunities in Delivering and Providing Culturally and Linguistically Tailored Cardiovascular Disease and Stroke Prevention Education: A Qualitative Exploratory Study

Background

Cardiovascular disease (CVD) and stroke disproportionately affect culturally and linguistically diverse (CALD) communities, where access to prevention programmes is often limited by cultural, language, and systemic barriers. Understanding the experiences of healthcare professionals and nongovernment organisations in delivering and providing education to these communities is essential for developing effective, culturally tailored strategies that support equitable cardiovascular outcomes.

Objectives

To explore (i) healthcare professionals', key health networks' and non-government organisations' experiences of delivering CVD or stroke prevention education; (ii) the context i.e., barriers and enablers to delivering education; and (iii) and identify core components and ideal approach to deliver a CVD and stroke prevention education and behaviour change programme for CALD communities.

Design

A qualitative exploratory study using semi-structured interviews. Deductive thematic analysis was completed using NVivo 15.

Setting and Participants

Fourteen participants were recruited and interviewed via Zoom; seven cardiovascular and stroke healthcare professionals and seven representatives from a range of federal- and state-level cardiovascular and stroke nongovernment organisations and multicultural health networks.

Results

Two key themes were identified: (1) challenges when providing and delivering culturally and linguistically tailored education and (2) components of an ideal education programme. Challenges in delivering CVD and stroke prevention education include the need to navigate diverse cultural health beliefs and worldviews, limited access to qualified interpreters and a lack of culturally relevant and translated resources. An ideal education programme was considered one that is simple, evidence-based, culturally appropriate, and delivered in accessible, preferred formats. Key to sustained behaviour change beyond the programme are family and community engagement, the use of codesign approach to foster ownership and relevance from the inception, trust-building, and ongoing reinforcement of educational content through reminders.

Discussion and Conclusion

While systemic barriers such as interpreter shortages and limited funding persist, engaging families, empowering individuals, tailoring delivery methods, and embracing community-specific strategies offer clear pathways for improving engagement and reach of CVD and stroke prevention education. Incorporating these components, particularly through codesign, will be essential in ensuring equitable cardiovascular outcomes for people from CALD communities.

Patient or Public Contribution

Adults with lived experience of cardiovascular disease and stroke were engaged during the conceptualisation of this study through informal discussions. Clinicians and representatives from end-user organisations were involved as participants in the study.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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