评估针对突触核蛋白病的疾病修饰疗法的累积、有意义的益处:会议记录和研究路线图。

Rand health quarterly Pub Date : 2025-09-29 eCollection Date: 2025-09-01
Claire E O'Hanlon, Sarah Schutz
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摘要

本文总结了于2024年11月18日和19日在纽约举行的针对突触核蛋白病的疾病修饰疗法(dmt)累积获益评估研讨会。这次活动由一个非营利组织联盟主办,汇集了来自学术界、工业界和患者倡导团体的代表,讨论dmt对突触核蛋白病的累积、有意义的益处;确定外地的优先事项;探索合作的机会。突触核蛋白病,包括帕金森病、路易体痴呆和多系统萎缩,是神经退行性疾病,具有共同的潜在病理生物学和许多临床相似之处,包括运动困难、认知改变、睡眠障碍和自主神经症状。虽然目前有一些针对突触核蛋白病的对症治疗方法,但dmt——针对疾病潜在生物学过程的药物——目前仍在开发中,可能在不久的将来获得监管部门的批准。然而,许多其他因素会影响患者是否能够获得这些新疗法。政府、私人支付者、临床医生、医疗专业协会、患者和护理合作伙伴对有意义的利益的考虑与关注安全性和有效性的监管机构不同。研讨会与会者讨论了这些因素,并考虑了下一步了解dmt对突触核蛋白病的益处。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Assessing Cumulative, Meaningful Benefits of Disease-Modifying Therapies Targeting Synucleinopathies: Conference Proceedings and Roadmap for Research.

This article summarizes the Workshop on Assessing Cumulative Benefits of Disease-Modifying Therapies (DMTs) Targeting Synucleinopathies, which was held in New York, N.Y., on November 18 and 19, 2024. This event was hosted by a coalition of nonprofit organizations and brought together representatives from academia, industry, and patient advocacy communities to discuss the cumulative, meaningful benefits of DMTs for synucleinopathies; to identify priorities for the field; and to explore opportunities for collaboration. Synucleinopathies, including Parkinson's disease, dementia with Lewy bodies, and multiple system atrophy, are neurodegenerative conditions that share underlying pathobiology and have many clinical similarities, including difficulties with movement, changes in cognition, sleep disturbances, and autonomic symptoms. Although there are some available symptomatic treatments for synucleinopathies, DMTs-medications that address the underlying biological processes of illness-are currently under development and might obtain regulatory approval in the near future. However, many other factors contribute to whether patients will have access to these novel therapies. Governments, private payers, clinicians, medical professional specialty societies, patients, and care partners think about meaningful benefits differently from regulators, who focus on safety and efficacy. The workshop attendees discussed these factors and considered next steps for understanding the benefits of DMTs for synucleinopathies.

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