通过量身定制的移动应用程序提供专业支持,以减轻痴呆症患者家庭照顾者的压力和抑郁症状:混合方法试点研究。

IF 2 Q3 HEALTH CARE SCIENCES & SERVICES
Aber Sharon Kagwa, Jessica Longhini, Muhammed Nazmul Islam, Sofia Vikström, Åsa Dorell, Hanne Konradsen, Zarina Nahar Kabir
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引用次数: 0

摘要

背景:为居住在家中的痴呆症患者提供非正式护理可能具有挑战性,并可能导致护理人员压力和抑郁。通过移动应用程序提供的干预措施为以社区为基础的社会护理专业人员提供了创新的解决方案,以满足痴呆症患者家庭照护者日益增长的支持需求。目的:本研究旨在考察在家中生活的痴呆症家庭主妇中,(1)通过移动应用程序提供的专业支持与照顾者压力和抑郁症状之间的潜在关联,(2)家庭主妇与社会护理专业人员之间通过聊天互动提供的支持类型,以及(3)通过移动应用程序提供的支持与照顾者压力和抑郁症状的变化之间的关系。方法:一项混合方法的初步研究将定量的干预前和干预后数据与定性的记录聊天数据相结合。在8周的时间里,研究人员招募了住在家里的痴呆症患者的fc (n=35)来测试一个定制的移动应用程序。主要和次要结局指标分别是照顾者压力和抑郁症状。描述性统计用于总结社会人口因素;采用推理统计分析干预前后结果的平均差异。根据护理者压力评分在干预前和干预后的变化将护理者分为3组。广义线性模型分析确定了参与干预与照顾者压力和抑郁症状之间的关系,调整了年龄、性别和与痴呆症患者的关系。使用总结性内容分析分析记录的聊天数据,以确定提供和接收的支持类型。照顾者压力的变化与聊天数据相结合,以确定所接受的支持类型的模式。结果:FCs的平均年龄为69.4 (SD 11.9)岁,以女性(28/35,80%)、伴侣(24/35,68.6%)和与痴呆患者同住(26/35,74%)居多。干预后照顾者压力的平均得分(24.1,SD 9.3)略高于干预前(23.9,SD 9.2),而抑郁症状的平均得分从干预前(6.5,SD 5.1)降至干预后(6.2,SD 5.2)。这些差异没有统计学意义。回归分析显示,在调整了年龄、性别和与痴呆症患者的关系后,参与干预与照顾者压力(β=0.171, α= 0.05; P= 0.86)或抑郁症状(β=-0.293, α= 0.05; P= 0.75)没有统计学意义上的显著相关。然而,在亚组水平上的混合方法分析表明,社会护理专业人员通过移动应用程序提供的频繁定制支持可能会减少居住在家中的痴呆症患者的护理压力。结论:该研究强调了提供频繁和个性化支持以满足痴呆症患者fc需求的重要性。本研究的发现可能有助于社区社会护理提供者计划和组织向居住在家中的痴呆症患者的fc提供的数字支持内容。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Professional Support Through a Tailor-Made Mobile App to Reduce Stress and Depressive Symptoms Among Family Caregivers of People With Dementia: Mixed Methods Pilot Study.

Background: Providing informal care to people with dementia living at home can be challenging and may cause caregiver stress and depression. Interventions delivered through mobile apps provide innovative solutions for community-based social care professionals to address the increasing support needs of family caregivers (FCs) of people with dementia.

Objective: This study aimed to examine, among FCs of people with dementia living at home, (1) the potential association between professional support provided through a mobile app and caregiver stress and depressive symptoms, (2) types of support provided through chat interactions between FCs and social care professionals, and (3) how support provided through a mobile app relates to changes in caregiver stress and depressive symptoms.

Methods: A mixed methods pilot study integrated quantitative pre- and postintervention data with qualitative logged chat data. FCs of people with dementia living at home (n=35) were recruited to test a tailor-made mobile app over 8 weeks. The primary and secondary outcome measures were caregiver stress and depressive symptoms, respectively. Descriptive statistics were used to summarize sociodemographic factors; inferential statistics were used to analyze mean differences in outcomes pre- and postintervention. FCs were divided into 3 groups based on changes in caregiver stress scores between pre- and postintervention. Generalized linear model analyses determined the association between participation in the intervention and caregiver stress and depressive symptoms, adjusting for age, gender, and relationship to the person with dementia. Logged chat data were analyzed using summative content analysis to identify types of support provided and received. Changes in caregiver stress were integrated with chat data to determine patterns in types of support received.

Results: The mean age of FCs was 69.4 (SD 11.9) years, with most being women (28/35, 80%), partners (24/35, 68.6%), and living with the person with dementia (26/35, 74%). The mean score of caregiver stress was marginally higher postintervention (24.1, SD 9.3) than preintervention (23.9, SD 9.2), whereas the mean score of depressive symptoms decreased from pre- (6.5, SD 5.1) to postintervention (6.2, SD 5.2). These differences were not statistically significant. Regression analyses showed that participation in the intervention was not statistically significantly associated with caregiver stress (β=0.171, α=.05; P=.86) or depressive symptoms (β=-0.293, α=.05; P=.75) after adjusting for age, gender, and relationship to the person with dementia. However, mixed methods analysis at the subgroup level suggested that frequent tailored support by social care professionals delivered through a mobile app may reduce caregiver stress among FCs of people with dementia living at home.

Conclusions: The study highlights the importance of providing frequent and individualized support to meet the needs of FCs of people with dementia. Findings from this study may help community-based social care providers plan and organize digital support content provided to FCs of people with dementia living at home.

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来源期刊
JMIR Formative Research
JMIR Formative Research Medicine-Medicine (miscellaneous)
CiteScore
2.70
自引率
9.10%
发文量
579
审稿时长
12 weeks
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