一项试点研究调查的可接受性和可行性的群体干预自闭症青少年神经性厌食症的父母在一个专门的饮食失调服务。

IF 4.5 3区 医学 Q2 NUTRITION & DIETETICS
Sofia Loizou, Kate Beresford, Julian Baudinet, Paula Herrera-Gener, Danielle Oregan, Colleen Alford, Kate Tchanturia, Catherine Stewart
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引用次数: 0

摘要

背景:许多患有神经性厌食症的儿童和青少年也可能患有自闭症。虽然自闭症儿童和年轻人的身体健康状况可能与正常的同龄人相似,但他们更有可能经历较差的恢复,需要更多的强化治疗。同样,父母报告需要心理健康服务的额外支持。家长可以从团体干预中受益,作为家庭治疗的辅助手段,帮助他们有效地照顾孩子,并减少这可能对他们产生的心理影响。本研究旨在提供团体干预的概述,并评估其可行性和可接受性。方法:采用出勤率评价小组的可行性。家长们被邀请来评估这个小组的可接受性,每次都用简短的量化措施。对6位家长进行了单独的定性访谈,以评估可行性和可接受性。录音被逐字抄录,并使用反身性主题分析进行分析。结果:来自8个家庭的17位家长(母亲n = 8,父亲n = 8,继母n = 1)参加了两个试验组(第一组n = 8,第二组n = 9)。总出勤率为66.5%,每个家庭有一位家长参加了85.7%的课程。平均而言,这些课程被评为高度相关、有用,并提高了父母对孩子的理解。通过对六位家长(第一组n = 4,第二组n = 2)的定性访谈,得出了两个主要主题:(1)连接和支持的空间;(2)从知识到实践。家长们说,这个小组帮助他们减少了孤立感,获得了技能,并开始在家里练习实施新的学习方法。该小组并非所有方面都有帮助,并就干预的资源、结构和强度提出了建议。讨论:研究结果表明干预是可行和可接受的。这项初步研究重复了先前关于为护理人员提供额外支持的好处的发现。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A pilot study investigating the acceptability and feasibility of a group intervention for parents of autistic young people with anorexia nervosa within a specialist eating disorders service.

Background: Many children and young people presenting with anorexia nervosa will also be autistic. While autistic children and young people may have similar physical health outcomes compared to their neurotypical peers, they are more likely to experience poorer recovery, requiring more intensive treatments. Similarly, parents report needing additional support from mental health services. Parents may benefit from a group intervention as an adjunct to family therapy to help them effectively care for their children and to reduce the psychological impact this may have on them. This study aimed to provide an overview of the group intervention and evaluate its feasibility and acceptability.

Methods: Attendance rates were used to evaluate the feasibility of the group. Parents were invited to evaluate the acceptability of the group with brief quantitative measures each session. Individual qualitative interviews were conducted with six parents to evaluate both feasibility and acceptability. Recordings were transcribed verbatim and analysed using reflexive thematic analysis.

Results: 17 parents (mothers n = 8, fathers n = 8, stepmother n = 1) from eight families took part in two pilot groups (group 1 n = 8, group 2 n = 9). Total attendance rate was 66.5%, with one parent from each family attending 85.7% of sessions. On average, sessions were rated highly relevant, useful and improved parents' understanding of their child. From qualitative interviews conducted with six parents (group 1 n = 4, group 2 n = 2), two main themes were generated: (1) A space for connection and support, (2) From knowledge to practice. Parents spoke of the way the group helped them feel less isolated, gain skills and begin to practice implementing new learning at home. Not all aspects of the group were helpful, and recommendations were made regarding the resources, structure and intensity of the intervention.

Discussion: Findings suggest that the intervention is feasible and acceptable. This pilot study replicates previous findings about benefits of additional support for carers.

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来源期刊
Journal of Eating Disorders
Journal of Eating Disorders Neuroscience-Behavioral Neuroscience
CiteScore
5.30
自引率
17.10%
发文量
161
审稿时长
16 weeks
期刊介绍: Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice. The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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