有一个中风孩子的父母的经历：一个系统的回顾和元人种志。

IF 4.3 2区医学 Q1 CLINICAL NEUROLOGY

Developmental Medicine and Child Neurology Pub Date : 2025-09-26 DOI:10.1111/dmcn.70004

Radhika Bhatia, Shereena Yoon, Ellie Simpson, Nancy McStravick, Vuokko Wallace

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引用次数: 0

摘要

目的：探讨并综合以访谈为基础的质性研究方法，探讨儿童中风的父母经历。方法：对文献进行系统检索，确定了7项研究，这些研究使用定性访谈方法调查父母的经历，他们的孩子（25岁以下）患有儿科中风。提取数据并对其质量进行评价。所有7项研究都被纳入元人种志。一个由两位家长组成的咨询小组通过两次咨询会议为分析做出了贡献。结果：建立了一个家长经验的概念模型，强调了儿童中风意识的缺乏，卫生保健专业人员的支持不足，以及社会规范的作用。这些因素显著地塑造了父母的情感影响和他们经历的轨迹，从紧急反应到调整。解释：提高对儿童中风的认识，同时为家庭提供持续的专业支持，可能会大大改善父母及其子女的结局。

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Parents' experiences of having a child who had a stroke: A systematic review and meta-ethnography.

Aim: To explore and synthesize interview-based, qualitative research of parents' experiences of having a child who had a paediatric stroke.

Method: A systematic search of literature identified seven studies that used qualitative, interview-based methods to investigate parents' experiences of having a child (younger than 25 years) who had a paediatric stroke. Data were extracted and appraised for quality. All seven studies were included in a meta-ethnography. An advisory group of two parents contributed to the analysis through two consultation meetings.

Results: A conceptual model of parents' experiences was developed, highlighting the lack of childhood stroke awareness, insufficient support from healthcare professionals, and the role of societal norms. These factors significantly shaped both the emotional impact on parents and the trajectory of their experiences, from emergency response to adjustment.

Interpretation: Greater awareness of childhood stroke, alongside sustained professional support for families, may substantially improve outcomes for parents and their children.

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来源期刊

Developmental Medicine and Child Neurology 医学-临床神经学

CiteScore

7.80

自引率

13.20%

发文量

338

审稿时长

3-6 weeks

期刊介绍： Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA). For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.