{"title":"类风湿关节炎患者自我感知负担的决定因素：一项横断面研究。","authors":"Yuping Tang, Yinghui Zhang, Lei Shi, Jieyu Zhang, Cailing Wang, Wei Wei, Liyu Zhang","doi":"10.1186/s42358-025-00473-4","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To investigate the current status of self-perceived burden (SPB) among rheumatoid arthritis (RA) patients and analyze its influencing factors.</p><p><strong>Methods: </strong>A cross-sectional study was conducted with 140 RA patients recruited from four tertiary hospitals in Taiyuan city, Shanxi Province. The data was collected through structured questionnaires assessing: General Information Questionnaire, Self-Perceived Burden Scale (SPBS), Activities of Daily Living (ADL) Scale, Social Support Rating Scale(SSRS).Multiple linear regression were employed to identify key predictors of SPB.</p><p><strong>Results: </strong>From 112 distributed questionnaires, 104 were returned valid, with a 92.85% response rate. RA patients (40.38%) exhibited a moderate SPB, with a mean score of 29.10 ± 10.27. The primary concern was the emotional impact on caregivers, with the highest scores reflecting worry about caregiver burden (3.33±1.47). Multivariate linear regression analysis identified marital status (β = 0.19, P = 0.028), Activities of Daily Living (β=-0.26, P = 0.006), and family monthly income (β=-0.30, P = 0.002) as significant predictors of SPB in RA patients.</p><p><strong>Conclusions: </strong>The findings underscore the moderate but significant SPB in RA patients, with key influences being Activities of Daily Living, marital status, and economic factors. These insights are vital for tailoring supportive care and shaping public health strategies to better serve this patient population.</p><p><strong>Clinical trial registration number: </strong>Not applicable.</p>","PeriodicalId":48634,"journal":{"name":"Advances in Rheumatology","volume":"65 1","pages":"41"},"PeriodicalIF":2.1000,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Determinants of self-perceived burden among rheumatoid arthritis patients: a cross-sectional study.\",\"authors\":\"Yuping Tang, Yinghui Zhang, Lei Shi, Jieyu Zhang, Cailing Wang, Wei Wei, Liyu Zhang\",\"doi\":\"10.1186/s42358-025-00473-4\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>To investigate the current status of self-perceived burden (SPB) among rheumatoid arthritis (RA) patients and analyze its influencing factors.</p><p><strong>Methods: </strong>A cross-sectional study was conducted with 140 RA patients recruited from four tertiary hospitals in Taiyuan city, Shanxi Province. 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Multivariate linear regression analysis identified marital status (β = 0.19, P = 0.028), Activities of Daily Living (β=-0.26, P = 0.006), and family monthly income (β=-0.30, P = 0.002) as significant predictors of SPB in RA patients.</p><p><strong>Conclusions: </strong>The findings underscore the moderate but significant SPB in RA patients, with key influences being Activities of Daily Living, marital status, and economic factors. 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引用次数: 0
摘要
目的：了解类风湿性关节炎（RA）患者自我感知负担（SPB）的现状，并分析其影响因素。方法：对山西省太原市四所三级医院的140例RA患者进行横断面研究。数据采用结构化问卷法进行评估：一般信息问卷、自我感知负担量表（SPBS）、日常生活活动量表（ADL）、社会支持量表（SSRS）。采用多元线性回归方法确定SPB的关键预测因子。结果：共发放问卷112份，回收有效问卷104份，回收率为92.85%。RA患者（40.38%）表现为中度SPB，平均评分为29.10±10.27。最主要的担忧是对照顾者的情绪影响，对照顾者负担的担忧得分最高（3.33±1.47）。多元线性回归分析发现，婚姻状况（β= 0.19, P = 0.028）、日常生活活动（β=-0.26, P = 0.006）和家庭月收入（β=-0.30, P = 0.002）是类风湿性关节炎患者SPB的显著预测因素。结论：研究结果强调了RA患者中度但显著的SPB，其主要影响因素是日常生活活动、婚姻状况和经济因素。这些见解对于定制支持性护理和制定公共卫生战略以更好地为这一患者群体服务至关重要。临床试验注册号：不适用。
Determinants of self-perceived burden among rheumatoid arthritis patients: a cross-sectional study.
Purpose: To investigate the current status of self-perceived burden (SPB) among rheumatoid arthritis (RA) patients and analyze its influencing factors.
Methods: A cross-sectional study was conducted with 140 RA patients recruited from four tertiary hospitals in Taiyuan city, Shanxi Province. The data was collected through structured questionnaires assessing: General Information Questionnaire, Self-Perceived Burden Scale (SPBS), Activities of Daily Living (ADL) Scale, Social Support Rating Scale(SSRS).Multiple linear regression were employed to identify key predictors of SPB.
Results: From 112 distributed questionnaires, 104 were returned valid, with a 92.85% response rate. RA patients (40.38%) exhibited a moderate SPB, with a mean score of 29.10 ± 10.27. The primary concern was the emotional impact on caregivers, with the highest scores reflecting worry about caregiver burden (3.33±1.47). Multivariate linear regression analysis identified marital status (β = 0.19, P = 0.028), Activities of Daily Living (β=-0.26, P = 0.006), and family monthly income (β=-0.30, P = 0.002) as significant predictors of SPB in RA patients.
Conclusions: The findings underscore the moderate but significant SPB in RA patients, with key influences being Activities of Daily Living, marital status, and economic factors. These insights are vital for tailoring supportive care and shaping public health strategies to better serve this patient population.
Clinical trial registration number: Not applicable.
期刊介绍：
Formerly named Revista Brasileira de Reumatologia, the journal is celebrating its 60th year of publication.
Advances in Rheumatology is an international, open access journal publishing pre-clinical, translational and clinical studies on all aspects of paediatric and adult rheumatic diseases, including degenerative, inflammatory and autoimmune conditions. The journal is the official publication of the Brazilian Society of Rheumatology and welcomes original research (including systematic reviews and meta-analyses), literature reviews, guidelines and letters arising from published material.
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