父母照顾患有饮食失调的孩子的经历:经济挑战的影响。

IF 4.5 3区 医学 Q2 NUTRITION & DIETETICS
Hannah Shaw, Nadia Ranceva, Dawn Langdon
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引用次数: 0

摘要

背景:研究强调了与照顾患有饮食失调的儿童或青少年相关的重大挑战,并且对家庭的影响是长期和广泛的。在文献中,父母报告说他们生活的各个方面都受到了影响,包括他们的职业功能和经济状况。本研究探讨了父母在照顾患有饮食失调症的孩子时遇到的挑战,重点是经济问题以及这些问题对家庭和治疗的影响。方法:采用探索性描述定性方法,对从儿童和青少年饮食失调服务中心招募的12名家长进行半结构化访谈。访谈记录使用反身性主题分析进行分析。结果:得出的总体主题是饮食失调患者的生活完全不同。分析过程产生了九个子主题,它们被分为三个主要主题:(1)财务成本,(2)对我们的财务影响,(3)有帮助的事情。家长们报告了相关的重大社会心理和经济影响,而他们的孩子对治疗的抵制、不可预测的病程以及社会层面对饮食失调缺乏了解,又加剧了这种影响。结论:研究结果表明,经济压力加重了护理人员的负担,如果没有足够的经济支持,一些家庭难以负担必要的治疗费用,这两者都可能阻碍康复。因此,服务部门必须在整个评估和治疗过程中处理所涉财务问题和每个家庭的独特情况。服务部门可以根据家庭需要提供相应的支持,提供食物银行券,提供福利信息,并协助收回停车和公共交通费用,从而减轻父母的负担。需要进一步的研究来评估经济负担的程度及其对治疗的影响,并确定哪些人受影响最大。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents' experiences of caring for a child with an eating disorder: the impact of financial challenges.

Background: Research has highlighted significant challenges associated with caring for a child or adolescent with an eating disorder, and that the impacts on the family are both long-standing and widespread. Within the literature, parents have reported that all aspects of their lives were affected, including their occupational functioning and financial situation. This study explored parents' experiences of the challenges associated with caring for a child with an eating disorder, focusing on the financial implications and the effect of these on the family and treatment.

Methods: Using the exploratory descriptive qualitative approach, semi-structured interviews were completed with 12 parents recruited from a child and adolescent eating disorder service. Interview transcripts were analysed using reflexive thematic analysis.

Results: The overarching theme generated was Life is completely different living with the eating disorder. The analysis process yielded nine sub-themes, which were grouped into three main themes: (1) Financial costs, (2) Financial impact on us, and (3) Things that helped. Parents reported significant interrelated psychosocial and economic impacts, which were exacerbated by their child's resistance to treatment, an unpredictable course of illness, and a lack of understanding about eating disorders at a societal level.

Conclusions: The findings suggest financial pressures exacerbate the significant caregiver burden and, without adequate financial support, some families struggle to afford essential treatment costs, both of which can impede recovery. Thus, services must address the financial implications and each family's unique situation throughout the assessment and treatment process. Services can mitigate burdens for parents by tailoring support to families' needs, offering foodbank vouchers, providing information on benefits, and assisting with reclaiming parking and public transport costs. Further research is required to assess the extent of the financial burden and its impact on treatment, and to determine which individuals are most affected.

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来源期刊
Journal of Eating Disorders
Journal of Eating Disorders Neuroscience-Behavioral Neuroscience
CiteScore
5.30
自引率
17.10%
发文量
161
审稿时长
16 weeks
期刊介绍: Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice. The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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