听我的声音！肠造口患者自我倡导的经验：一项质性研究。

IF 2 Q1 NURSING

Nursing Reports Pub Date : 2025-09-19 DOI:10.3390/nursrep15090341

Yanlin Shen, Yashi Zou, Juan Du, Shaoqi Chen, Jing Tan, Huijuan Ma

{"title":"听我的声音！肠造口患者自我倡导的经验：一项质性研究。","authors":"Yanlin Shen, Yashi Zou, Juan Du, Shaoqi Chen, Jing Tan, Huijuan Ma","doi":"10.3390/nursrep15090341","DOIUrl":null,"url":null,"abstract":"Objective: This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. Methods: A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. Results: Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). Conclusions: Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.","PeriodicalId":40753,"journal":{"name":"Nursing Reports","volume":"15 9","pages":""},"PeriodicalIF":2.0000,"publicationDate":"2025-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12472885/pdf/","citationCount":"0","resultStr":"{\"title\":\"Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study.\",\"authors\":\"Yanlin Shen, Yashi Zou, Juan Du, Shaoqi Chen, Jing Tan, Huijuan Ma\",\"doi\":\"10.3390/nursrep15090341\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Objective: This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. Methods: A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. Results: Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). Conclusions: Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.\",\"PeriodicalId\":40753,\"journal\":{\"name\":\"Nursing Reports\",\"volume\":\"15 9\",\"pages\":\"\"},\"PeriodicalIF\":2.0000,\"publicationDate\":\"2025-09-19\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12472885/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Nursing Reports\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3390/nursrep15090341\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Nursing Reports","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3390/nursrep15090341","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}

引用次数: 0

摘要

目的：本定性研究旨在了解肠造口患者自我倡导的经历，了解自我倡导的行为、影响因素及益处。方法：采用描述现象学方法，研究时间为2024年4 - 6月。对17例肠造口患者进行访谈，采用Colaizzi七步法对访谈数据进行分析。结果：生成了3个主题和13个子主题：自我倡导行为（信息寻求、有效沟通、支持寻求和决策）、自我倡导影响因素（肠造口类型、经济负担、护理负担、污名化和社会支持）和自我倡导利益（提高自我护理技能、提高生理-心理-社会适应能力、改变饮食习惯和同伴支持）。结论：自我倡导是克服挑战、满足需求和培养联系力量的重要工具，可以设计有针对性的干预措施来提高自我倡导和自我管理的水平。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study.

Objective: This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. Methods: A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. Results: Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). Conclusions: Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Nursing Reports NURSING-

CiteScore

2.50

自引率

4.20%

发文量

期刊介绍： Nursing Reports is an open access, peer-reviewed, online-only journal that aims to influence the art and science of nursing by making rigorously conducted research accessible and understood to the full spectrum of practicing nurses, academics, educators and interested members of the public. The journal represents an exhilarating opportunity to make a unique and significant contribution to nursing and the wider community by addressing topics, theories and issues that concern the whole field of Nursing Science, including research, practice, policy and education. The primary intent of the journal is to present scientifically sound and influential empirical and theoretical studies, critical reviews and open debates to the global community of nurses. Short reports, opinions and insight into the plight of nurses the world-over will provide a voice for those of all cultures, governments and perspectives. The emphasis of Nursing Reports will be on ensuring that the highest quality of evidence and contribution is made available to the greatest number of nurses. Nursing Reports aims to make original, evidence-based, peer-reviewed research available to the global community of nurses and to interested members of the public. In addition, reviews of the literature, open debates on professional issues and short reports from around the world are invited to contribute to our vibrant and dynamic journal. All published work will adhere to the most stringent ethical standards and journalistic principles of fairness, worth and credibility. Our journal publishes Editorials, Original Articles, Review articles, Critical Debates, Short Reports from Around the Globe and Letters to the Editor.