{"title":"Rett综合征儿童日常沟通能力的研究：基于沟通伙伴的视角","authors":"Louiza Voniati, Rafaella Georgiou, Andri Papaleontiou, Angeliki Tsapara, Angelos Papadopoulos, Dionysios Tafiadis","doi":"10.1007/s41252-024-00407-z","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>Rett syndrome, a rare genetic disorder, may impact language development and be associated with severe communication deficits. Communication partners, such as parents and health professionals involved in children’s daily lives with RTT, are the most relevant for understanding their communication needs. This article aimed to provide an overview of the identification of communication abilities in children with RTT in their daily routine from the perspectives of communication partners who interact with individuals diagnosed with RTT.</p><h3>Methods</h3><p>A scoping review was used to comprehensively search and gather evidence from existing literature on how communication partners understand, define, and classify the communication abilities of children with RTT in their daily routines. The quality of each selected study was assessed using the modified critical appraisal skills program (CASP) checklist.</p><h3>Results</h3><p>This scoping review revealed specific communication abilities in children with RTT as described by the communication partners interacting with them daily. Accurate assessment outcomes rely on the communication partners’ perspectives on the communication skills of children with RTT.</p><h3>Conclusions</h3><p>This review highlights the need for future studies to support and identify preassigned communicative acts in the communication assessment of children with RTT.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":"9 2","pages":"185 - 194"},"PeriodicalIF":1.5000,"publicationDate":"2024-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Scoping Review of Communication Abilities of Children with Rett Syndrome in Daily Routine: A Communication Partners’ Perspectives\",\"authors\":\"Louiza Voniati, Rafaella Georgiou, Andri Papaleontiou, Angeliki Tsapara, Angelos Papadopoulos, Dionysios Tafiadis\",\"doi\":\"10.1007/s41252-024-00407-z\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><p>Rett syndrome, a rare genetic disorder, may impact language development and be associated with severe communication deficits. Communication partners, such as parents and health professionals involved in children’s daily lives with RTT, are the most relevant for understanding their communication needs. This article aimed to provide an overview of the identification of communication abilities in children with RTT in their daily routine from the perspectives of communication partners who interact with individuals diagnosed with RTT.</p><h3>Methods</h3><p>A scoping review was used to comprehensively search and gather evidence from existing literature on how communication partners understand, define, and classify the communication abilities of children with RTT in their daily routines. The quality of each selected study was assessed using the modified critical appraisal skills program (CASP) checklist.</p><h3>Results</h3><p>This scoping review revealed specific communication abilities in children with RTT as described by the communication partners interacting with them daily. Accurate assessment outcomes rely on the communication partners’ perspectives on the communication skills of children with RTT.</p><h3>Conclusions</h3><p>This review highlights the need for future studies to support and identify preassigned communicative acts in the communication assessment of children with RTT.</p></div>\",\"PeriodicalId\":36163,\"journal\":{\"name\":\"Advances in Neurodevelopmental Disorders\",\"volume\":\"9 2\",\"pages\":\"185 - 194\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-06-19\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Advances in Neurodevelopmental Disorders\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://link.springer.com/article/10.1007/s41252-024-00407-z\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Neurodevelopmental Disorders","FirstCategoryId":"1085","ListUrlMain":"https://link.springer.com/article/10.1007/s41252-024-00407-z","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
Scoping Review of Communication Abilities of Children with Rett Syndrome in Daily Routine: A Communication Partners’ Perspectives
Objectives
Rett syndrome, a rare genetic disorder, may impact language development and be associated with severe communication deficits. Communication partners, such as parents and health professionals involved in children’s daily lives with RTT, are the most relevant for understanding their communication needs. This article aimed to provide an overview of the identification of communication abilities in children with RTT in their daily routine from the perspectives of communication partners who interact with individuals diagnosed with RTT.
Methods
A scoping review was used to comprehensively search and gather evidence from existing literature on how communication partners understand, define, and classify the communication abilities of children with RTT in their daily routines. The quality of each selected study was assessed using the modified critical appraisal skills program (CASP) checklist.
Results
This scoping review revealed specific communication abilities in children with RTT as described by the communication partners interacting with them daily. Accurate assessment outcomes rely on the communication partners’ perspectives on the communication skills of children with RTT.
Conclusions
This review highlights the need for future studies to support and identify preassigned communicative acts in the communication assessment of children with RTT.
期刊介绍：
Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.
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