传播以患者为优先的肾结石疾病研究议程：患者的认知和机会。

IF 2 3区医学 Q2 UROLOGY & NEPHROLOGY

Urology Pub Date : 2025-09-22 DOI:10.1016/j.urology.2025.09.022

Drew Price, Gregory Taisan, Katherine Sheridan, Samantha Jacklin, Casey Dauw, Charles Scales, Ruth Beck, Hunter Beck, Chris Zellers, Kate Zellers, Kim Hollander, Necole Streeper, Jonathan S Ellison

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引用次数: 0

摘要

目的：查询广泛的利益相关者群体对肾结石疾病患者优先研究议程的反馈，并评估利益相关者对肾结石疾病社区参与机会的看法。方法：我们调查了以前从事广泛努力制定患者优先研究议程的利益相关者，询问最终研究议程的相关性。每个议程项目的重要性按1（最不重要）到9（至关重要）的等级进行评级。调查以电子方式进行。结果：在返回并完全完成的68 / 162（42%）调查中，6个议程项目中有5个达到或超过了7的重要性中值，表明它们对大多数利益相关者至关重要。总体而言，只有33%和22%的患者和护理人员报告容易找到肾结石疾病的教育资源和支持团体。结论：以患者为优先的肾结石疾病研究议程反映了大多数利益相关者（包括患者和护理人员）的重要主题。需要进一步与肾结石社区成员接触的机会，包括随时可以获得支持小组和教育材料。

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Dissemination of a Patient-prioritized Research Agenda for Kidney Stone Disease: Patient Perceptions and Opportunities.

Objective: To query a broad group of stakeholders for feedback on a patient-prioritized research agenda for kidney stone disease and assess stakeholder perceptions of community engagement opportunities for kidney stone disease.

Methods: We surveyed stakeholders who previously engaged in a broad-reaching effort to develop a patient-prioritized research agenda, inquiring as to the relevance of the final research agenda. Importance was rated for each agenda item on a scale of 1 (least important) to 9 (of critical importance). Surveys were administered electronically.

Results: Of the 68/162 (42%) returned and fully completed surveys, 5 of the 6 agenda items met or exceeded median importance values of 7, demonstrating that they were of critical importance to a majority of stakeholders. Overall, only 33% and 22% of patients and caregivers reported ease in finding educational resources and support groups for kidney stone disease, respectively.

Conclusion: A patient-prioritized research agenda for kidney stone disease reflects important topics to most stakeholders, including patients and caregivers. Opportunities to further engage kidney stone community members are needed and include ready access to support groups and educational materials.

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来源期刊

Urology 医学-泌尿学与肾脏学

CiteScore

3.30

自引率

9.50%

发文量

716

审稿时长

59 days

期刊介绍： Urology is a monthly, peer–reviewed journal primarily for urologists, residents, interns, nephrologists, and other specialists interested in urology The mission of Urology®, the "Gold Journal," is to provide practical, timely, and relevant clinical and basic science information to physicians and researchers practicing the art of urology worldwide. Urology® publishes original articles relating to adult and pediatric clinical urology as well as to clinical and basic science research. Topics in Urology® include pediatrics, surgical oncology, radiology, pathology, erectile dysfunction, infertility, incontinence, transplantation, endourology, andrology, female urology, reconstructive surgery, and medical oncology, as well as relevant basic science issues. Special features include rapid communication of important timely issues, surgeon''s workshops, interesting case reports, surgical techniques, clinical and basic science review articles, guest editorials, letters to the editor, book reviews, and historical articles in urology.