德国脂水肿患者淋巴水肿生活质量问卷的验证。

IF 1.9 4区 医学 Q3 MEDICINE, RESEARCH & EXPERIMENTAL
Johanna Mahler, Vaughan Keeley, Doha Obed, Alperen Bingöl, Peter M Vogt, Catarina Hadamitzky
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引用次数: 0

摘要

背景:脂肪水肿是一种主要影响女性的慢性疾病,涉及双侧皮下脂肪组织的疼痛性增加。人们对这种疾病的社会影响仍然知之甚少。本研究旨在对德国脂水肿患者的淋巴水肿生活质量问卷(LYMQOL)进行验证,评估其可行性、信度和效度。方法与结果:共81例德语II期脂水肿患者两次填写lyqol(手臂和腿部版本)和SF-36简短健康调查问卷,间隔2周。通过反应率评估可行性,通过因子分析评估量表结构,通过SF-36相关性评估效度,通过内部一致性和重测信度分析评估信度。有效有效率达到68%。手臂版本和腿版本的结构效度与SF-36分量表有显著相关。腿部版本的内部一致性从可接受到优秀,手臂版本从良好到优秀。两个版本的重测可靠性都非常好。结论:本研究验证了LYMQOL作为评估脂水肿患者生活质量的有力工具,也验证了本文中包含的德语翻译。我们希望填补一个关键的研究空白,并支持未来的临床研究,旨在提高病人的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Validation of the Lymphedema Quality of Life Questionnaire for German Patients with Lipedema.

Background: Lipedema, a chronic condition affecting mostly women, involves painful bilateral increase of subcutaneous adipose tissue. The societal impact of this disease is still poorly understood. This study aimed to validate the Lymphedema Quality-of-Life Questionnaire (LYMQOL) for lipedema patients in Germany, assessing its feasibility, reliability, and validity. Methods and Results: A total of 81 German-speaking stage II lipedema patients were asked to complete both the LYMQOL (arm and leg versions) and the Short Form Health Survey (SF-36) questionnaires twice, and this was 2 weeks apart. Feasibility was evaluated through response rates, scale structure via factor analysis, validity through SF-36 correlations, and reliability through internal consistency and test-retest reliability analysis. A valid 68% response rate was achieved. Both arm and leg versions demonstrated construct validity with significant correlations to SF-36 subscales. Internal consistency for the leg version was acceptable to excellent, and good to excellent for the arm version. Test-retest reliability was very good for both versions. Conclusions: This study validates the LYMQOL as a robust tool for assessing lipedema patients' quality of life, and also validates the German translation contained in this article. We hope to fill a critical research gap and support future clinical studies aiming at enhancing patient care.

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来源期刊
Lymphatic research and biology
Lymphatic research and biology Medicine-Cardiology and Cardiovascular Medicine
CiteScore
3.10
自引率
7.10%
发文量
85
审稿时长
>12 weeks
期刊介绍: Lymphatic Research and Biology delivers the most current peer-reviewed advances and developments in lymphatic biology and pathology from the world’s leading biomedical investigators. The Journal provides original research from a broad range of investigative disciplines, including genetics, biochemistry and biophysics, cellular and molecular biology, physiology and pharmacology, anatomy, developmental biology, and pathology. Lymphatic Research and Biology coverage includes: -Vasculogenesis and angiogenesis -Genetics of lymphatic disorders -Human lymphatic disease, including lymphatic insufficiency and associated vascular anomalies -Physiology of intestinal fluid and protein balance -Immunosurveillance and immune cell trafficking -Tumor biology and metastasis -Pharmacology -Lymphatic imaging -Endothelial and smooth muscle cell biology -Inflammation, infection, and autoimmune disease
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