基于国际功能、残疾和健康分类（ICF）的高须动脉炎患者问题分析。

IF 3.1 3区医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS

Respiratory medicine Pub Date : 2025-09-18 DOI:10.1016/j.rmed.2025.108354

Elif Gur Kabul , Sinem Bozcuk , Bilge Basakci Calik , Ayse Nur Bayındır Akbas , Veli Cobankara

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引用次数: 0

摘要

背景：目前关于高松动脉炎的研究主要集中在临床、放射学和免疫学方面，由于缺乏疾病特异性的国际功能、残疾和健康分类（ICF）框架，因此在了解其功能、社会心理和多维影响方面存在重大差距。本研究旨在利用基于ICF的现象学方法分析高须动脉炎患者的问题。方法：对确诊为高须动脉炎的患者进行定性研究。18名患者被问及6个开放式问题。他们的回答被录音，然后转录。答复被分成有意义的单位，并由两名独立的卫生专业人员与最精确的ICF类别联系起来。为了评估相关ICF分类的适当性，16位风湿病学家被要求指出每个分类是否代表患者的问题、资源或环境方面。结果：两名卫生专业人员将患者的反应与122个ICF类别联系起来，kappa系数为0.774，表明基本一致。16位风湿病学家通过两轮和一个小型德尔菲程序审查了相关的类别。最终，确定了Takayasu动脉炎核心组的74个ICF分类，一致性≥75%。48个患者识别的类别没有得到风湿病学家的确认(结论：风湿病专家支持ICF核心集的内容效度。该ICF核心集可用于评估高须动脉炎患者。

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Problem analysis based on the international classification of functioning, disability and health (ICF) in patients with Takayasu arteritis

Background

Existing research on Takayasu arteritis has mainly focused on clinical, radiological, and immunological aspects, leaving a significant gap in understanding its functional, psychosocial, and multidimensional impact due to the absence of a disease-specific International Classification of Functioning, Disability, and Health (ICF) framework. This study aimed to analyze the problems of patients with Takayasu arteritis using a phenomenological approach based on the ICF.

Methods

A qualitative study was conducted with patients diagnosed with Takayasu arteritis. Eighteen patients were asked six open-ended questions. Their responses were audio-recorded and later transcribed. The responses were divided into meaningful units and linked to the most precise ICF categories by two independent health professionals. To evaluate the appropriateness of the linked ICF categories, sixteen rheumatologists were asked to indicate whether each category represented patients' problems, resources, or environmental aspects.

Results

Patients' responses were linked to 122 ICF categories by the two health professionals, with a kappa coefficient of 0.774 indicating substantial agreement. Sixteen rheumatologists reviewed the linked categories through two rounds and a mini-Delphi process. Ultimately, 74 ICF categories were confirmed for the Takayasu arteritis Core Set with ≥75 % agreement. Forty-eight patient-identified categories were not confirmed by the rheumatologists (<75 % agreement).

Conclusions

The content validity of the ICF Core Set for Takayasu arteritis was supported by expert rheumatologists. This ICF Core Set can be applied to the evaluation of patients with Takayasu arteritis.

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来源期刊

Respiratory medicine 医学-呼吸系统

CiteScore

7.50

自引率

0.00%

发文量

199

审稿时长

38 days

期刊介绍： Respiratory Medicine is an internationally-renowned journal devoted to the rapid publication of clinically-relevant respiratory medicine research. It combines cutting-edge original research with state-of-the-art reviews dealing with all aspects of respiratory diseases and therapeutic interventions. Topics include adult and paediatric medicine, epidemiology, immunology and cell biology, physiology, occupational disorders, and the role of allergens and pollutants. Respiratory Medicine is increasingly the journal of choice for publication of phased trial work, commenting on effectiveness, dosage and methods of action.