{"title":"展开隐藏的叙述:在一个痴呆症护理机构的感官精神瞥见。","authors":"Els van Wijngaarden","doi":"10.1002/hast.4990","DOIUrl":null,"url":null,"abstract":"<p>In this essay, I explore the possibility of meaningful communication and genuine connection within dementia-care settings, and particularly among those living with advanced dementia. Drawing on empirical research and informed by the phenomenology of Bernhard Waldenfels, I aim to challenge dominant cultural narratives that reduce dementia-care institutions to places of confinement and loss. I propose an approach that affirms the irreducible otherness of every human being, including persons with dementia. Through case studies and philosophical reflection, I argue that recognizing the strangeness of both the other and the self can open up mutual spaces of encounter. This, in turn, may cultivate an <i>ethos of the senses</i>: a moral attitude rooted in bodily responsiveness, in which all senses are engaged. Such a responsive posture may not only foster more humane and reciprocal relationships within dementia care contexts but also contribute to richer, more nuanced public narratives about what it means to live with dementia.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S34-S40"},"PeriodicalIF":2.3000,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4990","citationCount":"0","resultStr":"{\"title\":\"Unfolding Hidden Narratives: Glimpses of an Ethos of Senses in a Dementia-Care Facility\",\"authors\":\"Els van Wijngaarden\",\"doi\":\"10.1002/hast.4990\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>In this essay, I explore the possibility of meaningful communication and genuine connection within dementia-care settings, and particularly among those living with advanced dementia. Drawing on empirical research and informed by the phenomenology of Bernhard Waldenfels, I aim to challenge dominant cultural narratives that reduce dementia-care institutions to places of confinement and loss. I propose an approach that affirms the irreducible otherness of every human being, including persons with dementia. Through case studies and philosophical reflection, I argue that recognizing the strangeness of both the other and the self can open up mutual spaces of encounter. This, in turn, may cultivate an <i>ethos of the senses</i>: a moral attitude rooted in bodily responsiveness, in which all senses are engaged. Such a responsive posture may not only foster more humane and reciprocal relationships within dementia care contexts but also contribute to richer, more nuanced public narratives about what it means to live with dementia.</p>\",\"PeriodicalId\":55073,\"journal\":{\"name\":\"Hastings Center Report\",\"volume\":\"55 S1\",\"pages\":\"S34-S40\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-09-18\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4990\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Hastings Center Report\",\"FirstCategoryId\":\"98\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1002/hast.4990\",\"RegionNum\":3,\"RegionCategory\":\"哲学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"ETHICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Hastings Center Report","FirstCategoryId":"98","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/hast.4990","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"ETHICS","Score":null,"Total":0}
Unfolding Hidden Narratives: Glimpses of an Ethos of Senses in a Dementia-Care Facility
In this essay, I explore the possibility of meaningful communication and genuine connection within dementia-care settings, and particularly among those living with advanced dementia. Drawing on empirical research and informed by the phenomenology of Bernhard Waldenfels, I aim to challenge dominant cultural narratives that reduce dementia-care institutions to places of confinement and loss. I propose an approach that affirms the irreducible otherness of every human being, including persons with dementia. Through case studies and philosophical reflection, I argue that recognizing the strangeness of both the other and the self can open up mutual spaces of encounter. This, in turn, may cultivate an ethos of the senses: a moral attitude rooted in bodily responsiveness, in which all senses are engaged. Such a responsive posture may not only foster more humane and reciprocal relationships within dementia care contexts but also contribute to richer, more nuanced public narratives about what it means to live with dementia.
期刊介绍:
The Hastings Center Report explores ethical, legal, and social issues in medicine, health care, public health, and the life sciences. Six issues per year offer articles, essays, case studies of bioethical problems, columns on law and policy, caregivers’ stories, peer-reviewed scholarly articles, and book reviews. Authors come from an assortment of professions and academic disciplines and express a range of perspectives and political opinions. The Report’s readership includes physicians, nurses, scholars, administrators, social workers, health lawyers, and others.