丧失亲人的家庭成员报告的心脏病晚期患者的痛苦症状。

IF 2.6 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS
Ryo Nakamaru, Takashi Kohno, Atsushi Mizuno, Yoko Nakazawa, Mitsunori Miyashita, Tatsuya Morita, Yasuyuki Okumura, Yoshiyuki Kizawa, Shohei Kawagoe, Hiroshi Yamamoto, Emi Takeuchi, Risa Yamazaki, Asao Ogawa
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引用次数: 0

摘要

背景:家庭成员的感知在理解临终病人的痛苦症状中起着至关重要的作用。然而,在心脏疾病谱系中,关于fm报告的身体痛苦以及相应的护理环境和护理人员负担的研究仍然很少。方法:这项回顾性研究利用了一项全国性的死亡率随访调查,由心力衰竭、缺血性心脏病(IHD)或其他心脏病患者的丧家FMs完成。FMs采用纪念症状评估量表-短表(5分制)对11名患者在死亡前1 周出现的症状进行回顾性评分。根据被评为“有点”或更痛苦的症状的数量,比较三组患者和FMs的概况:轻微(0个症状)、轻度-中度(1-5个症状)和严重身体痛苦(6-11个症状)。结果:在5003例患者中(61.2% %为女性,平均年龄86.7 ± 9.7 岁),23.3% %、44.1% %和32.6% %分别被划分为轻度、轻中度和重度身体不适。最常见的fm报告症状是感到困倦(52.8% %)。严重痛苦的患者更有可能在医院接受治疗。接受姑息治疗的患者比例分别为5.8% %、11.2% %和16.1% %,分别为轻度、轻度和重度痛苦患者。严重痛苦患者的FMs报告更频繁的护理和更差的身体和心理状况。无论最初的诊断是什么,有最小身体痛苦的患者比例一直很低(心力衰竭,20.6% %;IHD, 27.3% %;其他疾病,23.8% %)。结论:相当大比例的FMs报告了患有心脏病的绝症患者经历身体痛苦。然而,接受姑息治疗的患者比例很低。那些有严重身体痛苦的FMs报告了更大的照顾负担。这些发现强调了对晚期心脏病患者及其家属进行更全面的姑息性干预的需求尚未得到满足。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Bereaved family members-reported distressing symptoms in terminally ill patients with heart disease.

Background: Family members' (FMs) perceptions play a crucial role in understanding distressing symptoms in terminally ill patients. However, research on FM-reported physical distress and the corresponding care settings and caregiver burdens remain sparse across the spectrum of heart diseases.

Methods: This retrospective study utilized a nationwide mortality follow-up survey completed by bereaved FMs of patients with heart failure, ischemic heart disease (IHD), or other heart diseases. FMs retrospectively rated distress from 11 patient symptoms experienced 1 week prior to death using the Memorial Symptom Assessment Scale-Short Form (5-point scale). Patient and FMs profiles were compared among three groups according to the number of symptoms rated "a little bit" or more distressing: minimal (0 symptoms), mild-moderate (1-5 symptoms), and severe physical distress (6-11 symptoms).

Results: Among 5003 patients (61.2 % women; mean age, 86.7 ± 9.7 years), 23.3 %, 44.1 %, and 32.6 % were classified as having minimal, mild-moderate, and severe physical distress, respectively. The most frequent FM-reported symptom was feeling drowsy (52.8 %). Patients with severe distress were more likely to have received care at hospitals. The proportion of patients perceived as receiving palliative care was 5.8 %, 11.2 %, and 16.1 % for those with minimal, mild-moderate, and severe distress, respectively. FMs of patients with severe distress reported more frequent caregiving and worse physical and psychological conditions. The proportion of patients with minimal physical distress was consistently low regardless of primary diagnosis (heart failure, 20.6 %; IHD, 27.3 %; other diseases, 23.8 %).

Conclusions: A substantial proportion of FMs reported terminally ill patients with heart disease experiencing physical distress. Nevertheless, the proportion of patients perceived as receiving palliative care was low. FMs of those with severe physical distress reported greater caregiving burden. These findings highlight an unmet need for more comprehensive palliative interventions for both patients and their families in advanced stages of heart disease.

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来源期刊
Journal of cardiology
Journal of cardiology CARDIAC & CARDIOVASCULAR SYSTEMS-
CiteScore
4.90
自引率
8.00%
发文量
202
审稿时长
29 days
期刊介绍: The official journal of the Japanese College of Cardiology is an international, English language, peer-reviewed journal publishing the latest findings in cardiovascular medicine. Journal of Cardiology (JC) aims to publish the highest-quality material covering original basic and clinical research on all aspects of cardiovascular disease. Topics covered include ischemic heart disease, cardiomyopathy, valvular heart disease, vascular disease, hypertension, arrhythmia, congenital heart disease, pharmacological and non-pharmacological treatment, new diagnostic techniques, and cardiovascular imaging. JC also publishes a selection of review articles, clinical trials, short communications, and important messages and letters to the editor.
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