感知需求和障碍在养育自闭症儿童和获得早期干预在卡塔尔:父母的声音。

IF 2.4 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Journal of Multidisciplinary Healthcare Pub Date : 2025-09-09 eCollection Date: 2025-01-01 DOI:10.2147/JMDH.S525521
Lara M Saranek, Mujahed Shraim, Nazim Abdel Aati, Ghadir Fakhri Al-Jayyousi
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引用次数: 0

摘要

背景:自闭症谱系障碍(ASD)是一种终身神经发育障碍,通常与精神健康合并症有关。养育被诊断为自闭症谱系障碍的孩子是父母面临的挑战。然而,关于阿拉伯国家父母挑战的研究是有限的。该研究旨在探索卡塔尔父母抚养自闭症儿童的经验,以及为他们的孩子提供的早期干预措施。方法:采用归纳定性研究设计。数据采用与家长面对面访谈的方式收集(n=20)。采访逐字记录,并采用专题分析。结果:从分析中得出的主要主题主要是:抚养被诊断为ASD的儿童的挑战;家长对现有ASD服务的看法;家长对自闭症儿童心理健康服务的认知;家长对COVID-19大流行对ASD服务影响的看法;以及抚养被诊断为自闭症谱系障碍的孩子对父母的影响。结论:父母在抚养被诊断为ASD的孩子以及为孩子获得ASD早期干预服务方面面临挑战。研究结果指导了与自闭症儿童及其家庭一起工作的卫生保健专业人员,以及在卡塔尔政府机构中制定自闭症服务标准的政策制定者。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perceived Needs and Barriers in Raising a Child with ASD and Accessing Early Interventions in Qatar: Parents' Voices.

Background: Autism Spectrum Disorder (ASD) is a lifelong neurodevelopmental disorder that is often associated with mental health comorbidities. Parents are challenged with raising a child diagnosed with ASD. However, research about parental challenges in Arab countries is limited. The study aims to explore parents' experiences of raising a child with ASD and accessing early interventions provided for their children in Qatar.

Methods: An inductive qualitative study design was applied. Data was collected using face-to-face interviews with parents (n=20). Interviews were transcribed verbatim, and thematic analysis was employed.

Results: The main elicited themes from the analysis were mainly about: challenges of raising a child diagnosed with ASD; parents' perception of existing ASD services; parents' perception of mental health services for children diagnosed with ASD; parents' perception of the impact of the COVID-19 pandemic on ASD services; and the impact of raising a child diagnosed with ASD on parents.

Conclusion: Parents face challenges with raising a child diagnosed with ASD and with accessing ASD early intervention services for their children. The findings guide health care professionals working with children with ASD and their families, and policy makers in developing standards of care for ASD service in the governmental facilities in Qatar.

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来源期刊
Journal of Multidisciplinary Healthcare
Journal of Multidisciplinary Healthcare Nursing-General Nursing
CiteScore
4.60
自引率
3.00%
发文量
287
审稿时长
16 weeks
期刊介绍: The Journal of Multidisciplinary Healthcare (JMDH) aims to represent and publish research in healthcare areas delivered by practitioners of different disciplines. This includes studies and reviews conducted by multidisciplinary teams as well as research which evaluates or reports the results or conduct of such teams or healthcare processes in general. The journal covers a very wide range of areas and we welcome submissions from practitioners at all levels and from all over the world. Good healthcare is not bounded by person, place or time and the journal aims to reflect this. The JMDH is published as an open-access journal to allow this wide range of practical, patient relevant research to be immediately available to practitioners who can access and use it immediately upon publication.
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