Dragana Lazarević, Hristina Stamenković, Tatjana Stanković, Stefan Đorđević, Dušica Novaković, Maja Zečević, Gordana Sušić, Valentina Živković
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引用次数: 0
摘要
目的:探讨生物治疗、学业成绩、父母文化程度和社会经济状况对青少年特发性关节炎(JIA)患者及其父母的转变准备程度的影响。方法:本横断面研究纳入了来自两个儿科诊所的青少年JIA患者。计算青少年关节炎疾病活动度评分,并对患者及家长进行过渡准备评估问卷(TRAQ)。收集了人口统计学和临床数据。结果:研究纳入91例JIA患者及其父母,中位年龄15.32岁,范围11.58 ~ 18岁;36例为活动性疾病。生物制剂的使用与儿童(P = 0.038)及其父母(P = 0.035)的过渡准备程度显著相关。学业成功与更高水平的过渡准备相关;与“非常好”组(P = 0.024; P = 0.002)和“优秀”组(P = 0.010; P = 0.012)相比,“良好”组的TRAQ显著降低。父母的教育程度或社会经济地位对过渡准备没有影响。结论:生物制剂的使用和更好的学业表现对患者及其家长的过渡准备有积极的影响。
Impact of Biologic Therapy, School Success, Parent's Education and Socioeconomic Status on Transition Readiness in Adolescents with Juvenile Idiopathic Arthritis and Their Parents.
Objective: To evaluate the effect of biologic therapy, school success, parental education and socioeconomic status on transition readiness of adolescent patients with juvenile idiopathic arthritis (JIA) and their parents.
Methods: This cross-sectional study enrolled adolescent patients with JIA from two pediatric clinics. Juvenile Arthritis Disease Activity Score was calculated, and Transition Readiness Assessment Questionnaire (TRAQ) was administered to the patients and their parents. Demographic and clinical data were collected.
Results: The study included 91 JIA patients (median age 15.32 years, range 11.58-18 years) and their parents; 36 had active disease. Biologic usage was significantly associated with transition readiness of children (P = 0.038) and their parents (P = 0.035). School success was associated with higher levels of transition readiness; TRAQ was significantly lower in observed groups with "good" school success compared to "very good" (P = 0.024; P = 0.002) and "excellent" (P = 0.010; P = 0.012). Parents' education or socioeconomic status has no influence on transition readiness.
Conclusion: Biologic usage and better school performance have a positive impact on the patients and their parents' transition readiness.
期刊介绍:
The general objective of Indian Pediatrics is "To promote the science and practice of Pediatrics." An important guiding principle has been the simultaneous need to inform, educate and entertain the target audience. The specific key objectives are:
-To publish original, relevant, well researched peer reviewed articles on issues related to child health.
-To provide continuing education to support informed clinical decisions and research.
-To foster responsible and balanced debate on controversial issues that affect child health, including non-clinical areas such as medical education, ethics, law, environment and economics.
-To achieve the highest level of ethical medical journalism and to produce a publication that is timely, credible and enjoyable to read.