经验成长：中国大陆儿科医疗服务提供者照顾绝症儿童经验的现象学研究

IF 2.3 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-09-11 DOI:10.1016/j.pedn.2025.09.003

Yanchao Wu , Zishen Wang , Dandan Song , Jennifer Hong , Zirong Tian , Xuan Zhou , Qiaohong Guo

{"title":"经验成长：中国大陆儿科医疗服务提供者照顾绝症儿童经验的现象学研究","authors":"Yanchao Wu , Zishen Wang , Dandan Song , Jennifer Hong , Zirong Tian , Xuan Zhou , Qiaohong Guo","doi":"10.1016/j.pedn.2025.09.003","DOIUrl":null,"url":null,"abstract":"<div><h3>Purpose</h3><div>Caring for terminally ill children is highly demanding and emotionally challenging for healthcare providers. Understanding their experiences is crucial for identifying their needs, thereby providing appropriate support. However, limited research has explored their experiences in caring for dying children in mainland China, where the death taboo culture runs deep. This study aims to elucidate pediatric healthcare providers' experience of caring for terminally ill children in mainland China.</div></div><div><h3>Methods</h3><div>This is a descriptive phenomenology. Semi-structured interviews were utilized to explore the views of a purposive sample of 19 healthcare providers recruited from five general hospitals and a pediatric palliative care institution in northern China. Data were analyzed using Colaizzi's seven-step analysis method.</div></div><div><h3>Results</h3><div>Five themes were identified: (1) Cultural and ethical tensions in pediatric end-of-life care; (2) Care reflecting cultural humility; (3) Holistic care practices for terminally ill children and their families; (4) Emotional and affective responses; (5) Multifaceted growth and transformation.</div></div><div><h3>Conclusions</h3><div>Caring for terminally ill children challenges pediatric healthcare providers emotionally and culturally, while also fostering personal and professional growth by offering deeper insights into life and death as well as the meaning of work.</div></div><div><h3>Implications for practice</h3><div>Pediatric healthcare providers should receive training with a focus on managing emotional distress, enhancing communication skills on death and dying topics, and fostering cultural humility.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"85 ","pages":"Pages 424-432"},"PeriodicalIF":2.3000,"publicationDate":"2025-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Growing through experience: A phenomenological study of pediatric healthcare providers' experience of caring for terminally ill children in mainland China\",\"authors\":\"Yanchao Wu , Zishen Wang , Dandan Song , Jennifer Hong , Zirong Tian , Xuan Zhou , Qiaohong Guo\",\"doi\":\"10.1016/j.pedn.2025.09.003\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Purpose</h3><div>Caring for terminally ill children is highly demanding and emotionally challenging for healthcare providers. Understanding their experiences is crucial for identifying their needs, thereby providing appropriate support. However, limited research has explored their experiences in caring for dying children in mainland China, where the death taboo culture runs deep. This study aims to elucidate pediatric healthcare providers' experience of caring for terminally ill children in mainland China.</div></div><div><h3>Methods</h3><div>This is a descriptive phenomenology. Semi-structured interviews were utilized to explore the views of a purposive sample of 19 healthcare providers recruited from five general hospitals and a pediatric palliative care institution in northern China. Data were analyzed using Colaizzi's seven-step analysis method.</div></div><div><h3>Results</h3><div>Five themes were identified: (1) Cultural and ethical tensions in pediatric end-of-life care; (2) Care reflecting cultural humility; (3) Holistic care practices for terminally ill children and their families; (4) Emotional and affective responses; (5) Multifaceted growth and transformation.</div></div><div><h3>Conclusions</h3><div>Caring for terminally ill children challenges pediatric healthcare providers emotionally and culturally, while also fostering personal and professional growth by offering deeper insights into life and death as well as the meaning of work.</div></div><div><h3>Implications for practice</h3><div>Pediatric healthcare providers should receive training with a focus on managing emotional distress, enhancing communication skills on death and dying topics, and fostering cultural humility.</div></div>\",\"PeriodicalId\":48899,\"journal\":{\"name\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"volume\":\"85 \",\"pages\":\"Pages 424-432\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-09-11\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0882596325003173\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Nursing-Nursing Care of Children & Families","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0882596325003173","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}

引用次数: 0

摘要

目的照顾绝症儿童对医疗保健提供者来说是一项高要求和情感挑战。了解他们的经历对于确定他们的需求，从而提供适当的支持至关重要。然而，在死亡禁忌文化根深蒂固的中国大陆，很少有研究探讨他们照顾临终儿童的经验。本研究旨在探讨中国大陆儿科医护人员对临终儿童的护理经验。方法这是一种描述现象学。本研究采用半结构化访谈的方式，对来自中国北方五家综合医院和一家儿科姑息治疗机构的19名医疗服务提供者的观点进行探讨。数据分析采用Colaizzi的七步分析法。结果确定了五个主题：(1)儿童临终关怀中的文化和伦理紧张；(2)体现文化谦逊的关怀；(3)为绝症儿童及其家人提供整体护理服务；(4)情绪和情感反应；(5)多方位成长转型。临终儿童的护理在情感和文化上都对儿科医护人员提出了挑战，同时也通过提供对生死和工作意义的更深入的见解来促进个人和专业成长。对实践的启示儿科医疗保健提供者应该接受培训，重点是管理情绪困扰，提高死亡和临终话题的沟通技巧，培养文化谦逊。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Growing through experience: A phenomenological study of pediatric healthcare providers' experience of caring for terminally ill children in mainland China

Purpose

Caring for terminally ill children is highly demanding and emotionally challenging for healthcare providers. Understanding their experiences is crucial for identifying their needs, thereby providing appropriate support. However, limited research has explored their experiences in caring for dying children in mainland China, where the death taboo culture runs deep. This study aims to elucidate pediatric healthcare providers' experience of caring for terminally ill children in mainland China.

Methods

This is a descriptive phenomenology. Semi-structured interviews were utilized to explore the views of a purposive sample of 19 healthcare providers recruited from five general hospitals and a pediatric palliative care institution in northern China. Data were analyzed using Colaizzi's seven-step analysis method.

Results

Five themes were identified: (1) Cultural and ethical tensions in pediatric end-of-life care; (2) Care reflecting cultural humility; (3) Holistic care practices for terminally ill children and their families; (4) Emotional and affective responses; (5) Multifaceted growth and transformation.

Conclusions

Caring for terminally ill children challenges pediatric healthcare providers emotionally and culturally, while also fostering personal and professional growth by offering deeper insights into life and death as well as the meaning of work.

Implications for practice

Pediatric healthcare providers should receive training with a focus on managing emotional distress, enhancing communication skills on death and dying topics, and fostering cultural humility.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.